Genetic testing—whether to allow complete freedom? Direct to consumer tests versus genetic tests for medical purposes
| Autor: | Madej Malgorzata, Witt Michał, Sąsiadek Maria |
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| Rok vydání: | 2021 |
| Předmět: |
Freedom
Referral Human Genetics • Review Direct-to-consumer tests Control (management) Internet privacy Medical information Legal acts Biology Informed consent Genetics Genetic predisposition medicine Humans Genetic Predisposition to Disease Confidentiality Genetic Testing Genetic testing Informed Consent medicine.diagnostic_test business.industry Interpretation (philosophy) General Medicine DTC Genetic data protection EU business Genetic medical tests |
| Zdroj: | Journal of Applied Genetics |
| ISSN: | 2190-3883 1234-1983 |
| DOI: | 10.1007/s13353-021-00670-z |
| Popis: | Direct-to-consumer tests opened the opportunity of genetic testing without medical supervision, e.g., without medical referral and medical interpretation of the results. Thus, these approaches allow for free access to information concerning individual genetic profile increasing the area of personal freedom, but also posing the risk of false (positive and negative) or misinterpreted results along with health and psychological negative consequences. The paper discusses medical and non-medical applications of DTC, exploring also the legal framework implemented by European states and organizations. These legal acts strive to control the developing DTC market through such basic principles as patient protection, informed consent, medical information confidentiality, and the rights to know and to refuse knowledge about one’s genetic predispositions. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
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