Ambulatory disabilities and the use of walking aids in patients with Hereditary Motor and Sensory Neuropathy type I (HMSN I)
| Autor: | Baziel G.M. van Engelen, Machiel J. Zwarts, Gijs Bleijenberg, M.L. Schillings, Joke S. Kalkman, Henk T. Hendricks, Marleen H. van der Linden |
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| Rok vydání: | 2007 |
| Předmět: |
Adult
Male medicine.medical_specialty Cross-sectional study Biomedical Engineering Physical Therapy Sports Therapy and Rehabilitation Disability Evaluation Speech and Hearing Physical medicine and rehabilitation Quality of life Acquired immunodeficiency syndrome (AIDS) medicine Humans Disabled Persons Orthopedics and Sports Medicine In patient Orthopedic Equipment business.industry Rehabilitation Middle Aged medicine.disease Checklist Cross-Sectional Studies Socioeconomic Factors Ambulatory Physical therapy Anxiety Female medicine.symptom Hereditary Sensory and Motor Neuropathy business Hereditary motor and sensory neuropathy |
| Zdroj: | Disability and Rehabilitation: Assistive Technology. 2:35-41 |
| ISSN: | 1748-3115 1748-3107 |
| DOI: | 10.1080/17483100600995086 |
| Popis: | To determine the level of ambulatory disability and the use of walking aids in well-ambulant Hereditary Motor and Sensory Neuropathy type I (HMSN I) patients, and to identify the related demographic, physical and psychological variables.Seventy-five well-ambulant HMSN I patients, aged 20-58 years, were measured in a cross-sectional assessment, addressing disability of ambulation and mobility (Sickness Impact Profile), demographics, muscle strength (Medical Research Council), use of walking aids, physical activity (actometer), fatigue (Checklist Individual Strength), and quality of life (EuroQoL).Seventy-two percent of the patients perceived a significant amount of ambulatory disability. These patients were less active, and more fatigued compared to patients without ambulatory disability, and healthy reference groups. The total patient sample showed marked distal paresis (mean MRC = 3.3), a high level of pain-discomfort (76%), but normal levels of employment (62.7%) and anxiety-depression (20%). Walking aids were used by 49% of the patients. These patients were older, less active, more fatigued, had less muscle strength, and perceived more disabilities of ambulation and mobility than non-users. Of the patients without walking aids, 41% perceived a significant amount of ambulatory disabilities.Ambulatory disability frequently occurred in well-ambulant HMSN I patients. The use of walking aids was not completely in accordance with the perceived ambulatory disability. Therefore prescription requires specific attention as well as complaints about pain and fatigue. |
| Databáze: | OpenAIRE |
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