An Integrative Review Exploring Psycho-Social Impacts and Therapeutic Interventions for Parent Caregivers of Young People Living with Duchenne’s Muscular Dystrophy
| Autor: | Joanne Atkinson, Barbara Davies, Christine English, Debbie Porteous |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
Gerontology
muscular dystrophy L400 Duchenne’s muscular dystrophy media_common.quotation_subject Psychological intervention MEDLINE L500 B100 Review CINAHL PsycINFO B700 03 medical and health sciences 0302 clinical medicine parents caregivers Intervention (counseling) 030212 general & internal medicine media_common family burden/care burden age 13–19 lcsh:RJ1-570 Duchenne's Muscular Dystrophy lcsh:Pediatrics psycho-social needs B900 Pediatrics Perinatology and Child Health Psychological resilience Psychology Psychosocial 030217 neurology & neurosurgery |
| Zdroj: | Children, Vol 8, Iss 212, p 212 (2021) Children |
| ISSN: | 2227-9067 |
| Popis: | The purpose of this integrative review was to explore psycho-social impacts and therapeutic interventions for parent caregivers of young people living with Duchenne’s Muscular Dystrophy (DMD). Electronic databases were searched for research publications between 2010 and 2020. This included Medline, CINAHL, PsycINFO, ERIC, ERC, and AMED. Four central themes emerged: Living with DMD; Knowing and telling; Transitioning; and Building resilience. The impact on parents caring for a child with DMD affected all aspects of their lives, changed over time, and had identifiable peak stress points. Unmet parental information and support needs left parents struggling in their role. Transition required changes to parenting behaviors and required adaptation and resilience. It is proposed that future investment should focus on anticipating family need, targeting intervention cognizant of predictable stress points and building resilience through social community. Parents may then be better positioned to support their child in looking forward. |
| Databáze: | OpenAIRE |
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