Red tape, slow emergency, and chronic disease management in post-María Puerto Rico
| Autor: | Kariela Rivera, Mark Padilla, Ricardo Vargas-Molina, Violeta Contreras, Kevin Grove, Jeffrey Ramos, Sergio Rivera, Sheilla Rodríguez-Madera, Nelson Varas-Díaz |
|---|---|
| Rok vydání: | 2021 |
| Předmět: | |
| Zdroj: | Crit Public Health |
| ISSN: | 1469-3682 0958-1596 |
| DOI: | 10.1080/09581596.2021.1998376 |
| Popis: | This paper draws upon the notion of slow emergency as a framework to interpret ethnographic and qualitative findings on the challenges faced by Puerto Ricans with chronic conditions and health sector representatives throughout the island during and after Hurricane María. We conducted participant observation and qualitative interviews with chronic disease patients (n=20) health care providers and administrators (n=42), and policy makers (n=5) from across the island of Puerto Rico in 2018 and 2019. Many Puerto Ricans coping with chronic diseases during and after María experienced bureaucratic red tape as the manifestation of colonial legacies of disaster management and health care. They describe a precarious existence in perpetual “application pending” status, waiting for services that were not forthcoming. Drawing on ethnographically informed case examples, we discuss the effects of these bureaucratic barriers on persons with three chronic conditions: renal disease, opioid dependency, and HIV/AIDS. We argue that while emergency management approaches often presume a citizen-subject with autonomous capacity to prepare for presumably transient disasters and envision a ‘post-disaster future’ beyond the immediate crisis, Puerto Rican voices draw attention to the longer, sustained, slow emergency of colonial governance. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|