Muscle strengthening intervention for boys with haemophilia: Developing and evaluating a best-practice exercise programme with boys, families and health-care professionals
| Autor: | David Stephensen, Liz Carroll, Pellatt-Higgins Tracy, Melanie Bladen, Eirini-Christina Saloniki, Ferhana Hashem, Wendy I Drechsler |
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| Rok vydání: | 2019 |
| Předmět: |
Male
medicine.medical_specialty Haemophilia Muscle strengthening Best practice Patient adherence Hemophilia A 03 medical and health sciences 0302 clinical medicine Intervention (counseling) Nominal group technique Health care Medicine Humans 030212 general & internal medicine Physiotherapy Exercise Boys business.industry Muscle strength 030503 health policy & services Muscles Public Health Environmental and Occupational Health Life‐experience Focus Groups medicine.disease Focus group Exercise programme Exercise Therapy Original Research Paper Physical therapy 0305 other medical science business Original Research Papers |
| Zdroj: | Health Expectations : An International Journal of Public Participation in Health Care and Health Policy |
| ISSN: | 1369-7625 1369-6513 |
| Popis: | Background Muscle strengthening exercises have the potential to improve outcomes for boys with haemophilia, but it is unclear what types of exercise might be of benefit. We elicited the views of health-care professionals, boys and their families to create and assess a home-based muscle strengthening programme. Objective To design and develop a muscle strengthening programme with health-care professionals aimed at improving musculoskeletal health, and refine the intervention by engaging boys with haemophilia and their families (Study 1). Following delivery, qualitatively evaluate the feasibility and acceptability of the exercise programme with the boys and the study's physiotherapists (Study 2). Design A person-based approach was used for planning and designing the exercise programme, and evaluating it post-delivery. The following methods were utilized: modified nominal group technique (NGT) with health-care professionals; focus group with families; exit interviews with boys; and interviews with the study's physiotherapists. Results Themes identified to design and develop the intervention included exercises to lower limb and foot, dosage, age accommodating, location, supervision and monitoring and incentivization. Programme refinements were carried out following engagement with the boys and families who commented on: dosage, location, supervision and incentivization. Following delivery, the boys and physiotherapists commented on progression and adaptation, physiotherapist contact, goal-setting, creating routines and identifying suitable timeframes, and a repeated theme of incentivization. Conclusions An exercise intervention was designed and refined through engagement with boys and their families. Boys and physiotherapists involved in the intervention's delivery were consulted who found the exercises to be generally acceptable with some minor refinements necessary. |
| Databáze: | OpenAIRE |
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