Community engagement in patient-centered outcomes research: Benefits, barriers, and measurement
| Autor: | Kelsi Carolan, Arden O'Donnell, Linda Sprague Martinez, Elmer Freeman, Yareliz Diaz |
|---|---|
| Rok vydání: | 2018 |
| Předmět: |
medicine.medical_specialty
Delphi method Stakeholder engagement 01 natural sciences Likert scale 03 medical and health sciences 0302 clinical medicine medicine Relevance (information retrieval) Implementation Policy and Community Engagement 030212 general & internal medicine 0101 mathematics implementation Medical education community partnerships patient centered outcomes research Community engagement stakeholder engagement 010102 general mathematics General Medicine policy and community engagement Ranking General partnership Outcomes research Psychology Research Article PCORI |
| Zdroj: | Journal of Clinical and Translational Science |
| ISSN: | 2059-8661 |
| DOI: | 10.1017/cts.2018.341 |
| Popis: | Introduction:This study employed the Delphi method, an exploratory method used for group consensus building, to determine the benefits and challenges associated with community engagement in patient-centered outcomes research.Methods:A series of email surveys were sent to the Patient-Centered Outcomes Research Institute (PCORI)-funded researchers (n = 103) in New England. Consensus was achieved through gathering themes and engaging participants in ranking their level of agreement over three rounds. In round one, participant responses were coded thematically and then tallied. In round two participants were asked to state their level of agreement with each of the themes using a Likert scale. Finally, in round three, the group was asked to rank the round two themes based on potential impact.Results:Results suggested the greatest benefit of community engagement is that it brings multiple perspectives to the table, with 92% ranking it as the first or second most important contribution. Time was ranked as the most significant barrier to engaging community. Strategies to overcome barriers to community engagement include engaging key stakeholders early in the research, being kind and respectful and spending time with stakeholders. The most significant finding was that no researchers reported having specific measures to evaluate community engagement.Conclusion:Community engagement can enhance both research relevance and methodology when researchers are engaged in meaningful collaborations. Advancing the science of community engagement will require the development of evaluation metrics to examine the multiple domains of partnership. |
| Databáze: | OpenAIRE |
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