Physician perceptions about living organ donation in patients with Amyotrophic Lateral Sclerosis
Autor: | Safdar Ansari, Mark B. Bromberg, Summer Gibson |
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Rok vydání: | 2017 |
Předmět: |
medicine.medical_specialty
Tissue and Organ Procurement Attitude of Health Personnel Terminally ill 030230 surgery Article 03 medical and health sciences 0302 clinical medicine Living organ donation mental disorders Physician perception Humans Medicine In patient Neurologists Organ donation Amyotrophic lateral sclerosis Intensive care medicine business.industry Amyotrophic Lateral Sclerosis Kidney donation General Medicine medicine.disease Tissue Donors United States nervous system diseases Respiratory failure Physical therapy Surgery Neurology (clinical) business 030217 neurology & neurosurgery |
Zdroj: | Clinical Neurology and Neurosurgery. 160:125-129 |
ISSN: | 0303-8467 |
Popis: | Objectives Patients with Amyotrophic Lateral Sclerosis (ALS) have expressed desire to become living organ donors but are unable to do so with current organ donation policies. Our objective is to assess ALS patient’s interest in organ donation, and perceived concerns of this practice by ALS neurologists. Patients and methods An electronic survey was administered to ALS neurologists across the United States regarding living organ donation in ALS patients prior to respiratory failure. Results 52 complete responses were received from 121 invites. 67% (35/52) of neurologists expressed no concerns about living organ donation in ALS patients, and 33% had concerns. The concerns related to respiratory failure, anesthesia exposure and renal dysfunction. With their concerns addressed, 71% of neurologists reported that they would endorse living organ donation. 49% of neurologists reported being asked by a patient for information regarding living organ donation. ALS neurologists felt that 22.8% of ALS patients (median 19%) would be interested in learning more about organ donation, while only 6% of neurologists broach this subject with their patients. Conclusion Our results indicate that 1 in every 4 ALS patients may be interested in exploring options for living organ donation, and this topic is not routinely addressed by ALS clinics. These results indicate an unexplored area of patient interest. To honor a patient’s wishes to donate, the transplant community will have to accommodate living organ donation from terminally ill patients, and address neurologist concerns. Such a practice could benefit two groups of patients. |
Databáze: | OpenAIRE |
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