Privacy in Genetics Research
| Autor: | John A. Phillips, Kathy Hudson, Patricia J. Murphy, Bernhard H. F. Weber, Monique K. Mansoura, Mary Jo Ellis Kahn, E. Crowley, Francis S. Collins, Gary D. Swergold, Leslie G. Biesecker, Mark A. Rothstein, Patricia Barr, J. Murray, Karen H. Rothenberg, Barbara P. Fuller, Judy Garber, Jill E. Stopfer |
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| Rok vydání: | 1999 |
| Předmět: |
Genetic Research
Research Subjects Genetics Medical MEDLINE Federal Government Disclosure Informed consent Humans Confidentiality Genetic Privacy Genetics Informed Consent Multidisciplinary Experimental Genetics Research Medical record Bioethics United States Experimental research Privacy Action plan Government Regulation Psychology Ethics Committees Research |
| Zdroj: | Science. 285:1359-1361 |
| ISSN: | 1095-9203 0036-8075 |
| DOI: | 10.1126/science.285.5432.1359 |
| Popis: | Rapid advances in genetics research and the emerging applications to medical practice have heightened public awareness and public concerns about who will have access to this information and how it will be used. In addition to concerns about the privacy of genetic information maintained in medical records, however, is the concern about the privacy of genetics information maintained in experimental research records. This article presents the National Action Plan on Breast Cancer (NAPBC) recommendations to protect the privacy of experimental genetics research records. |
| Databáze: | OpenAIRE |
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