Hearing the Voice of the Resident in Long-Term Care Facilities - An Internationally Based Approach to Assessing Quality of Life
| Autor: | Mary L. James, Anja Declercq, John N. Morris, Kai Saks, John P. Hirdes, Katarzyna Szczerbińska, Leon Geffen, Brant E. Fries, Eva Topinkova, Vahe Kehyayan, Harriet Finne-Soveri |
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| Jazyk: | angličtina |
| Rok vydání: | 2018 |
| Předmět: |
Male
medicine.medical_specialty Internationality Patients media_common.quotation_subject 03 medical and health sciences Dignity 0302 clinical medicine Quality of life Nursing Surveys and Questionnaires medicine Humans Conversation Quality (business) 030212 general & internal medicine Set (psychology) General Nursing media_common Aged business.industry 030503 health policy & services Health Policy General Medicine Long-Term Care Long-term care Cross-Sectional Studies Family medicine Quality of Life Female Self Report Geriatrics and Gerontology 0305 other medical science International development business Autonomy |
| Popis: | Objectives interRAI launched this study to introduce a set of standardized self-report measures through which residents of long-term care facilities (LTCFs) could describe their quality of life and services. This article reports on the international development effort, describing measures relative to privacy, food, security, comfort, autonomy, respect, staff responsiveness, relationships with staff, friendships, and activities. First, we evaluated these items individually and then combined them in summary scales. Second, we examined how the summary scales related to whether the residents did or did not say that the LTCFs in which they lived felt like home. Design Cross-sectional self-report surveys by residents of LTCFs regarding their quality of life and services. Setting/Participants Resident self-report data came from 16,017 individuals who resided in 355 LTCFs. Of this total, 7113 were from the Flanders region of Belgium, 5143 residents were from Canada, and 3358 residents were from the eastern and mid-western United States. Smaller data sets were collected from facilities in Australia (20), the Czech Republic (72), Estonia (103), Poland (118), and South Africa (87). Measurements The interRAI Self-Report Quality of Life Survey for LTCFs was used to assess residents' quality of life and services. It includes 49 items. Each area of inquiry (eg, autonomy) is represented by multiple items; the item sets have been designed to elicit resident responses that could range from highly positive to highly negative. Each item has a 5-item response set that ranges from “never” to “always.” Results Typically, we scored individual items scored based on the 2 most positive categories: “sometimes” and “always.” When these 2 categories were aggregated, among the more positive items were: being alone when wished (83%); decide what clothes to wear (85%); get needed services (87%); and treated with dignity by staff (88%). Areas with a less positive response included: staff knows resident's life story (30%); resident has enjoyable things to do on weekends (32%); resident has people to do things with (33%); and resident has friendly conversation with staff (45%). We identified 5 reliable scales; these scales were positively associated with the resident statement that the LTCF felt like home. Finally, international score standards were established for the items and scales. Conclusions This study establishes a set of standardized, self-report items and scales with which to assess the quality of life and services for residents in LTCFs. The study also demonstrates that these scales are significantly related to resident perception of the home-like quality of the facilities. |
| Databáze: | OpenAIRE |
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