Evaluation of patient involvement strategies in health technology assessment in Spain: the viewpoint of HTA researchers
| Autor: | Patricia Gavín Benavent, Juan Máximo Molina Linde, Elisa Puigdomènech, Ana Toledo-Chávarri, Yolanda Triñanes Pego, Nora Ibargoyen Roteta, Maria Jose Vicente Edo, Eva Reviriego Rodrigo, Blanca Novella-Arribas |
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| Rok vydání: | 2020 |
| Předmět: |
Medical education
Technology Assessment Biomedical Process (engineering) Health Policy Decision Making Capacity building Health technology Patient Preference Focus group Research Personnel Spain Agency (sociology) Humans Patient participation Thematic analysis Patient Participation Psychology Personnel Selection Inclusion (education) Qualitative Research |
| Zdroj: | International journal of technology assessment in health care. 37 |
| ISSN: | 1471-6348 0266-4623 |
| Popis: | Objective The Spanish Network of Agencies for Assessing National Health System Technologies and Performance (RedETS) defined a patient involvement (PI) framework for health technology assessment (HTA) activities in 2016. The aim of this study is to evaluate the process and impact of those PI initiatives that were implemented in the first year following the publication of this new framework. Methods A survey was sent to those HTA researchers who implemented PI in RedETS projects. Responses were reviewed by two authors. An adapted thematic analysis was performed and the results were later discussed by all authors. Results Six responses from six agencies/units were analyzed. The objectives of PI initiatives were the following: inclusion of patient perspectives, preferences and values; elicitation of important health outcomes measures; and barriers, facilitators, or suggestions for implementation. Different methods were used for PI: surveys, focus groups, in depth interviews, and participation in an expert panel. Five main themes emerged: (i) challenges with the recruitment process, (ii) needs identified, (iii) impact of PI, (iv) lessons learned, and (v) suggestions for the future. Conclusions PI initiatives within the RedETS framework were tailored to each HTA project, its specific goals and the individual needs and resources of each HTA agency. The results also pointed out how PI has a relevant impact that has enriched RedETS products providing key information on experiences, values, and preferences of patients, contributions that benefit the HTA and the process of drawing up recommendations. The main challenges were related to recruitment processes and capacity building. |
| Databáze: | OpenAIRE |
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