Development of FamilyTalk: an Intervention to Support Communication and Educate Families About Colorectal Cancer Risk
| Autor: | Kathleen A. Leppig, Travis Hyams, Deborah J. Bowen, Mercy Y. Laurino, Timothy Woolley, Gail P. Jarvik, Stacey A. Cohen |
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| Rok vydání: | 2019 |
| Předmět: |
medicine.medical_specialty
Colorectal cancer Colonoscopy Qualitative property Disease Article 03 medical and health sciences 0302 clinical medicine Risk Factors Intervention (counseling) medicine Humans Family 030212 general & internal medicine Family history Health Education Early Detection of Cancer medicine.diagnostic_test business.industry Communication Public Health Environmental and Occupational Health Usability medicine.disease Increased risk Oncology 030220 oncology & carcinogenesis Family medicine Colorectal Neoplasms business |
| Zdroj: | J Cancer Educ |
| ISSN: | 1543-0154 0885-8195 |
| DOI: | 10.1007/s13187-019-1484-3 |
| Popis: | INTRODUCTION. Family members of individuals with colorectal cancer (CRC) may be at increased risk of developing the disease. However, the majority of CRC can be prevented through colonoscopy screening and family members may not be aware if they are recommended to pursue earlier screening because of their family history of CRC. As such, tools must be developed to effectively communicate potential changes to the recommended age for colonoscopy screening and other important CRC related information to family members. METHODS. We modified and adapted a successful intervention for families with melanoma to be appropriate for families with CRC to increase communication and screening in family members. The multistep process included 1) developing a paper version of the intervention; 2) piloting the paper version among families with CRC; 3) developing the web-based version; and 4) testing the intervention for usability. Qualitative data was collected and analyzed for pilot testing. Usability testing utilized both qualitative and quantitative data. RESULTS. Patients with CRC liked the paper version and had multiple suggestions, including adding a better introduction, sections on genetics and family history, and clearer communication assistance. The web-based tool was well received and improved upon the linear book format with links, better section instructions, and more proactive communication tools for families. DISCUSSION. These processes produced materials that satisfied individuals from various families with assistance and support for communicating about CRC. Evaluating the effects of the tools in rigorous research projects is the next step. |
| Databáze: | OpenAIRE |
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