Family Centered Care For Patients With Congenital Heart Defects: Enhancing The Role Of Palliative Care

Autor: Jesse Boyett Anderson, Margo Hoover-Regan, Alida Yee, Kristin A. Shadman, Shardha Srinivasan, Allie Kiley
Rok vydání: 2021
Předmět:
Zdroj: Section on Hospice and Palliative Medicine Program.
Popis: Children with critical congenital heart defects (CHD) require multiple surgeries and spend substantial amounts of time hospitalized in the first year of life. Long hospital stays, complications, and slow recoveries disrupt family life and increase parental stress. Concurrently, parents make difficult decisions about their child’s care. Pediatric Palliative Care (PPC) teams can support families antenatally and postnatally, and help parents clarify goals of care, however, some cardiac providers hesitate to involve PPC in the care of these patients. The goal of this quality improvement project was to increase the percentage of patients with critical …
Databáze: OpenAIRE