Global Application of the Assessment of Communication Skills of Paediatric Endocrinology Fellows in the Management of Differences in Sex Development Using the ESPE E-Learning.Org Portal
| Autor: | Stenvert L. S. Drop, Alina German, Miriam Muscarella, Raja Brauner, Wilma Oostdijk, Jean-Pierre Chanoine, Sam T. H. Reerds, Kristen A Neville, Xiaoping Luo, Nalini S. Shah, Ellie Magrite, Antonio Balsamo, Berenice B. Mendonca, Patricia Y. Fechner, Shereen Abdelgaffar, Martijn Kuiper, Laura Kranenburg, Kalinka Grijpink, Paul-Martin Holterhus, Asma Deeb, Anders Juul, Rodolfo Rey, Martine Cools, Anna Nordenström, Julie Alderson, Meilan M. Rutter |
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| Přispěvatelé: | Pediatrics |
| Rok vydání: | 2017 |
| Předmět: |
Parents
Subspecialty training 020205 medical informatics Endocrinology Diabetes and Metabolism Physiology 02 engineering and technology Medicina Clínica E-learning COMPETENCY ASSESSMENT 0302 clinical medicine Endocrinology Professional-Family Relations Endocrinología y Metabolismo purl.org/becyt/ford/3.2 [https] 0202 electrical engineering electronic engineering information engineering Medicine DISORDERS OF SEX DEVELOPMENT media_common CONGENITAL ADRENAL HYPERPLASIA Information sharing Communication E-LEARNING Clinical communication Online learning Paediatric endocrinology purl.org/becyt/ford/3 [https] Communication skills CIENCIAS MÉDICAS Y DE LA SALUD Disorders of sex development Best practice media_common.quotation_subject education 030209 endocrinology & metabolism Empathy Truth Disclosure SUBSPECIALTY TRAINING 03 medical and health sciences Qualitative analysis ENDOCRINOLOGIA PEDIÁTRICA Humans Medical education Health professionals Competency assessment business.industry Infant Newborn Congenital adrenal hyperplasia ONLINE LEARNING Pediatrics Perinatology and Child Health business |
| Zdroj: | Hormone Research in Paediatrics, 88(2), 127-139. Karger Hormone Research in Paediatrics, 88(2), 127-139 Repositório Institucional da USP (Biblioteca Digital da Produção Intelectual) Universidade de São Paulo (USP) instacron:USP CONICET Digital (CONICET) Consejo Nacional de Investigaciones Científicas y Técnicas instacron:CONICET |
| ISSN: | 1663-2818 |
| Popis: | Background: Information sharing in chronic conditions such as disorders of/differences in sex development (DSD) is essential for a comprehensive understanding by parents and patients. We report on a qualitative analysis of communication skills of fellows undergoing training in paediatric endocrinology. Guidelines are created for the assessment of communication between health professionals and individuals with DSD and their parents. Methods: Paediatric endocrinology fellows worldwide were invited to study two interactive online cases (www.espe-elearning.org) and to describe a best practice communication with (i) the parents of a newborn with congenital adrenal hyperplasia and (ii) a young woman with 46,XY gonadal dysgenesis. The replies were analysed regarding completeness, quality, and evidence of empathy. Guidelines for structured assessment of responses were developed by 22 senior paediatric endocrinologists worldwide who assessed 10 selected replies. Consensus of assessors was established and the evaluation guidelines were created. Results: The replies of the fellows showed considerable variation in completeness, quality of wording, and evidence of empathy. Many relevant aspects of competent clinical communication were not mentioned; 15% (case 1) and 17% (case 2) of the replies were considered poor/insufficient. There was also marked variation between 17 senior experts in the application of the guidelines to assess communication skills. The guidelines were then adjusted to a 3-level assessment with empathy as a separate key item to better reflect the qualitative differences in the replies and for simplicity of use by evaluators. Conclusions: E-learning can play an important role in assessing communication skills. A practical tool is provided to assess how information is shared with patients with DSD and their families and should be refined by all stakeholders, notably interdisciplinary health professionals and patient representatives. Fil: Kranenburg, Laura J.C.. Erasmus University Medical Center; Países Bajos Fil: Reerds, Sam T.H.. Erasmus University Medical Center; Países Bajos Fil: Cools, Martine. University of Ghent; Bélgica Fil: Alderson, Julie. NHS Foundation Trust. University Hospitals Bristol; Reino Unido Fil: Muscarella, Miriam. University of California; Estados Unidos Fil: Magrite, Ellie. Ffounder And Trustee; Fil: Kuiper, Martijn. Erasmus University Medical Center; Fil: Abdelgaffar, Shereen. Cairo University; Egipto Fil: Balsamo, Antonio. Universidad de Bologna; Italia Fil: Brauner, Raja. Universite de Paris V; Francia Fil: Chanoine, Jean Pierre. British Columbia Children’s Hospital. Department of Paediatrics; Canadá Fil: Deeb, Asma. Mafraq Hospital; Emiratos Arabes Unidos Fil: Fechner, Patricia. University of Washington; Estados Unidos Fil: German, Alina. Technion - Israel Institute of Technology; Israel Fil: Holterhus, Paul Martin. Universitätsklinikum Schleswig-Holstein; Alemania. Christian-Albrechts-Universität zu Kiel; Alemania Fil: Juul, Anders. Universidad de Copenhagen; Dinamarca Fil: Mendonca, Berenice B.. Universidade de Sao Paulo; Brasil Fil: Neville, Kristen. Sydney Children's Hospital; Australia Fil: Nordenstrom, Anna. Karolinka Institutet; Suiza Fil: Oostdijk, Wilma. Leiden University; Países Bajos Fil: Rey, Rodolfo Alberto. Consejo Nacional de Investigaciones Científicas y Técnicas. Oficina de Coordinación Administrativa Parque Centenario. Centro de Investigaciones Endocrinológicas "Dr. César Bergada". Gobierno de la Ciudad de Buenos Aires. Centro de Investigaciones Endocrinológicas "Dr. César Bergada". Fundación de Endocrinología Infantil. Centro de Investigaciones Endocrinológicas "Dr. César Bergada"; Argentina. Gobierno de la Ciudad de Buenos Aires. Hospital General de Niños "Ricardo Gutiérrez"; Argentina Fil: Rutter, Meilan M.. University of Cincinnati; Estados Unidos Fil: Shah, Nalini. Seth GS Medical College & KEM Hospital; India Fil: Luo, Xiaoping. Tongji Hospital; China Fil: Grijpink, Kalinka. Delft University of Technology; Países Bajos Fil: Drop, Stenvert L.S.. Erasmus University Medical Center; Países Bajos |
| Databáze: | OpenAIRE |
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