Creating Community-Based Participatory Research in a Diverse Community: A Case Study

Autor: Linda Silka, Tellez T, Cleghorn Gd, Grullón M
Rok vydání: 2008
Předmět:
Zdroj: Journal of Empirical Research on Human Research Ethics. 3:5-16
ISSN: 1556-2654
1556-2646
DOI: 10.1525/jer.2008.3.2.5
Popis: Communities struggle to create research guidelines for ethical collaborative research within their locale. In Lawrence, Massachusetts (USA) a collaborative group of community members and academic researchers, known as the Mayors Health Task Force Research Initiative Working Group, took on the challenge of creating guidelines for ethical community-based research. This case study of the Task Force's work addresses questions of research ethics in a diverse community where families struggle with few resources and face many health disparities, under the often-intrusive and unhelpful scrutiny of researchers from the many nearby major research universities. Representatives from the city, community organizations, and research universities developed a set of core ethical principles for research partnerships, a list of criteria for agreements between partners, and a model to help guide researchers and community members toward equitable and mutually beneficial research. This model can be generalized to similar other communities.
Databáze: OpenAIRE