Magnetic resonance imaging in multiple sclerosis--patients' experiences, information interests and responses to an education programme

Autor: Jana Poettgen, Jan-Patrick Stellmann, Christoph Heesen, Susanne Siemonsen, Imke Backhus, Sascha Köpke, Jürgen Kasper, Anne Christin Rahn, Judith S. Brand
Rok vydání: 2014
Předmět:
Program evaluation
Male
Health Knowledge
Attitudes
Practice
Pilot Projects
Diagnostic Radiology
Surveys and Questionnaires
Medicine and Health Sciences
Qualitative Research
Brain Diseases
Multidisciplinary
medicine.diagnostic_test
Qualitative interviews
Data Collection
Radiology and Imaging
Neurodegenerative Diseases
Middle Aged
Radiation Exposure
Magnetic Resonance Imaging
Neurology
Medicine
Female
Training program
Research Article
Adult
medicine.medical_specialty
Multiple Sclerosis
Science
Immunology
Information needs
Spinal Cord Diseases
Autoimmune Diseases
Interviews as Topic
Patient Education as Topic
Diagnostic Medicine
medicine
Humans
Relevance (information retrieval)
business.industry
Multiple sclerosis
Biology and Life Sciences
Magnetic resonance imaging
medicine.disease
Demyelinating Disorders
Radiation Effects
Physical therapy
Clinical Immunology
Clinical Medicine
business
Qualitative research
Program Evaluation
Zdroj: PLoS ONE
PLoS ONE, Vol 9, Iss 11, p e113252 (2014)
ISSN: 1932-6203
Popis: BackgroundMagnetic resonance imaging (MRI) is a key diagnostic and monitoring tool in multiple sclerosis (MS) management. However, many scientific uncertainties, especially concerning correlates to impairment and prognosis remain. Little is known about MS patients' experiences, knowledge, attitudes, and unmet information needs concerning MRI.MethodsWe performed qualitative interviews (n = 5) and a survey (n = 104) with MS patients regarding MRI patient information, and basic MRI knowledge. Based on these findings an interactive training program of 2 hours was developed and piloted in n = 26 patients.ResultsInterview analyses showed that patients often feel lost in the MRI scanner and left alone with MRI results and images while 90% of patients in the survey expressed a high interest in MRI education. Knowledge on MRI issues was fair with some important knowledge gaps. Major information interests were relevance of lesions as well as the prognostic and diagnostic value of MRI results. The education program was highly appreciated and resulted in a substantial knowledge increase. Patients reported that, based on the program, they felt more competent to engage in encounters with their physicians.ConclusionThis work strongly supports the further development of an evidence-based MRI education program for MS patients to enhance participation in health-care.
Databáze: OpenAIRE
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