Ethical Challenges for Pediatric Biobanks
| Autor: | Suzanne Vercauteren, Tamsin Tarling, Aaron J. Goldenberg, Veronica Chow, Adam Velenosi, Ashton Ellis |
|---|---|
| Rok vydání: | 2021 |
| Předmět: |
Canada
medicine.medical_specialty Biomedical Research Best practice Population Vulnerability Medicine (miscellaneous) General Biochemistry Genetics and Molecular Biology 03 medical and health sciences 0302 clinical medicine medicine Humans Child education Biological Specimen Banks education.field_of_study Informed Consent 030219 obstetrics & reproductive medicine Ethical issues 0402 animal and dairy science 04 agricultural and veterinary sciences Cell Biology General Medicine 040201 dairy & animal science Biobank Age of majority Family medicine Psychology Pediatric population |
| Zdroj: | Biopreservation and Biobanking. 19:101-105 |
| ISSN: | 1947-5543 1947-5535 |
| Popis: | Biobank participation of children is an ethically complicated process as the vulnerability of this population is a concern throughout the entire process of biobanking. Some ethical issues are more prominent in pediatric biobanking and may not need to be considered in biobanking of adult specimens and data. These include assent, reconsent at the age of majority, capacity to consent, and consequences of genetic results on the child and family members. This article describes current processes and best practices described in the literature as well as our experience at the BC Children's Hospital BioBank, a pediatric institutional biobank in Vancouver, Canada. The focus is on processes more specific to pediatric biobanking, such as assent, as well as topics that affect the pediatric population differently compared to adult biobanking. |
| Databáze: | OpenAIRE |
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