Improving anthelmintic treatment for schistosomiasis and soil-transmitted helminthiases through sharing and reuse of individual participant data
| Autor: | Martin Walker, Luzia T. Freitas, Julia B. Halder, Matthew Brack, Jennifer Keiser, Charles H. King, Bruno Levecke, Yvonne Ai-Lian Lim, Otavio Pieri, Doudou Sow, J. Russell Stothard, Joanne P. Webster, Xiao-Nong Zhou, Robert F. Terry, Philippe J. Guérin, Maria-Gloria Basáñez |
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| Přispěvatelé: | Royal Veterinary College [London], University of London [London], University of Basel (Unibas), Université Gaston Berger de Saint-Louis Sénégal (UGB), Maladies infectieuses persistantes et émergentes en Afrique de l’Ouest [Dakar, Sénégal] (Equipe 3 - VITROME), Vecteurs - Infections tropicales et méditerranéennes (VITROME), Institut de Recherche pour le Développement (IRD)-Aix Marseille Université (AMU)-Institut de Recherche Biomédicale des Armées [Brétigny-sur-Orge] (IRBA)-Institut de Recherche pour le Développement (IRD)-Aix Marseille Université (AMU)-Institut de Recherche Biomédicale des Armées [Brétigny-sur-Orge] (IRBA), Wolfson Wellcome Biomedical Laboratories, The Natural History Museum, CEEED Centre for Emerging, Endemic and Exotic Diseases, Royal Veterinary College, Chinese Center for Disease Control and Prevention, Department of Infectious Disease Epidemiology [London] (DIDE), Imperial College London |
| Jazyk: | angličtina |
| Rok vydání: | 2022 |
| Předmět: |
wc_20
[SDV.MHEP.ME]Life Sciences [q-bio]/Human health and pathology/Emerging diseases treatment anthelmintic data sharing data reuse Medicine (miscellaneous) wc_800 qv_253 wc_810 [SDV.MP.BAC]Life Sciences [q-bio]/Microbiology and Parasitology/Bacteriology General Biochemistry Genetics and Molecular Biology soil-transmitted helminthiasis qx_200 [SDV.MHEP.CSC]Life Sciences [q-bio]/Human health and pathology/Cardiology and cardiovascular system [SDV.MHEP.MI]Life Sciences [q-bio]/Human health and pathology/Infectious diseases schistosomiasis [SDV.MP.VIR]Life Sciences [q-bio]/Microbiology and Parasitology/Virology Medicine and Health Sciences [SDV.MP.PAR]Life Sciences [q-bio]/Microbiology and Parasitology/Parasitology neglected tropical diseases |
| Zdroj: | Wellcome Open Research Wellcome Open Research, 2022, 7, pp.5. ⟨10.12688/wellcomeopenres.17468.1⟩ WELLCOME OPEN RESEARCH |
| ISSN: | 2398-502X |
| DOI: | 10.12688/wellcomeopenres.17468.1⟩ |
| Popis: | The Infectious Diseases Data Observatory (IDDO, https://www.iddo.org) has launched a clinical data platform for the collation, curation, standardisation and reuse of individual participant data (IPD) on treatments for two of the most globally important neglected tropical diseases (NTDs), schistosomiasis (SCH) and soil-transmitted helminthiases (STHs). This initiative aims to harness the power of data-sharing by facilitating collaborative joint analyses of pooled datasets to generate robust evidence on the efficacy and safety of anthelminthic treatment regimens. A crucial component of this endeavour has been the development of a Research Agenda to promote engagement with the SCH and STH research and disease control communities by highlighting key questions that could be tackled using data shared through the IDDO platform. Here, we give a contextual overview of the priority research themes articulated in the Research Agenda—a ‘living’ document hosted on the IDDO website—and describe the three-stage consultation process behind its development. We also discuss the sustainability and future directions of the platform, emphasising throughout the power and promise of ethical and equitable sharing and reuse of clinical data to support the elimination of NTDs. |
| Databáze: | OpenAIRE |
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