Parental Preference Assessment for Vesicoureteral Reflux Management in Children

Autor: Hillary L. Copp, Christopher S. Saigal, Jonathan C. Routh, Anand V. Bodapati, Geraldine N. Tran
Rok vydání: 2017
Předmět:
Parents
Adult
Male
Urologic Diseases
medicine.medical_specialty
vesico-ureteral reflux
Voiding cystourethrogram
Kidney Disease
Urology
Patient interviews
Decision Making
Clinical Sciences
030232 urology & nephrology
Vesicoureteral reflux
Article
7.3 Management and decision making
03 medical and health sciences
0302 clinical medicine
Ureter
7.1 Individual care needs
medicine
Humans
Child
Preschool
Retrospective Studies
Gynecology
Vesico-Ureteral Reflux
Pediatric
medicine.diagnostic_test
business.industry
Qualitative interviews
Prevention
Treatment options
Infant
Patient Preference
Preference assessment
Urology & Nephrology
medicine.disease
medicine.anatomical_structure
Content analysis
030220 oncology & carcinogenesis
Family medicine
Child
Preschool

ureter
Female
Management of diseases and conditions
business
urinary bladder
Zdroj: The Journal of urology, vol 197, iss 3 Pt 2
Popis: PurposeParents of children with vesicoureteral reflux are presented with a variety of management options, which in many cases offer a similar risk-benefit ratio. To facilitate shared decision making, parental preferences regarding vesicoureteral reflux treatment options need to be acknowledged. We aimed to characterize the clinical experience of parents and elicit core themes affecting decision making in regard to managing vesicoureteral reflux in their child.Materials and methodsA semistructured, qualitative interview script was developed and vetted by 25 pediatric urologists to discuss treatment options for vesicoureteral reflux. Additional patient interviews were conducted until new themes failed to arise. Content analysis was performed to extract all statements that described treatment options. Similar statements were combined until a final list of unique themes emerged.ResultsA total of 26 interviews were performed, yielding 689 statements about overall parent experiences with managing vesicoureteral reflux in the child and 450 statements (65%) pertaining to treatment options. Of the 13 themes that emerged, those most commonly considered were the prevention of future urinary tract infections by 85% of parents, the efficacy rate of treatment options by 85%, the burden of daily maintenance or compliance by 77%, antibiotic resistance by 69%, chronic kidney damage by 62% and invasiveness by 58%.ConclusionsOur study emphasizes that when choosing a treatment option for vesicoureteral reflux in their child, parent preferences regarding risks and benefits are variable. However, their chief concerns include whether a method decreases the risk of urinary tract infections, has an acceptable efficacy rate and aligns itself with the capabilities of the family. These themes help frame discussions between families and clinicians regarding vesicoureteral reflux management, and they can facilitate shared decision making.
Databáze: OpenAIRE