A Review of Literature on Health-Related Quality of Life of Retinoblastoma Survivors
| Autor: | Paula J Belson, Nancy A. Pike, Mary-Lynn Brecht, Ron D. Hays, Jo-Ann Eastwood |
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| Rok vydání: | 2019 |
| Předmět: |
Male
Pediatrics medicine.medical_specialty Adolescent Retinal Neoplasms Population Visual impairment Psychological intervention 03 medical and health sciences Young Adult 0302 clinical medicine Quality of life Cancer Survivors Surveys and Questionnaires medicine Humans Early childhood Young adult education Child education.field_of_study Oncology (nursing) Retinoblastoma business.industry Infant Newborn Infant medicine.disease humanities 030220 oncology & carcinogenesis Child Preschool Quality of Life Female Self Report medicine.symptom business Psychosocial 030217 neurology & neurosurgery |
| Zdroj: | Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses. 37(2) |
| ISSN: | 1532-8457 |
| Popis: | Background: Retinoblastoma is a malignant tumor of the eye that typically presents in early childhood and occurs in approximately 1 in 20,000 births. While active treatment of the tumor is typically completed in childhood, survivors often suffer from long-term effects from treatment including visual impairment, facial deformities, and fear of recurrence or secondary cancer. However, little is known how these long-term effects affect their health-related quality of life (HRQOL). Purpose: To review the literature on HRQOL in retinoblastoma survivors. Method: We searched three electronic databases from January 2005 to December 2018 for original research articles reporting on HRQOL or individual domains such as function, cognition, and psychosocial outcomes in retinoblastoma survivors. Results: A total of 59 articles were reviewed and 15 were identified as eligible. Five of the studies reported worse HRQOL in retinoblastoma survivors than controls or general population norms. Parent-proxy ratings were worse than survivors’ self-reports. Conclusion: Our findings confirm the need for further HRQOL research to assess the factors influencing long-term outcomes associated with treatment in adolescent and young adult retinoblastoma survivors. By identifying any potential deficits in specific domains of HRQOL, early interventions might be developed to improve HRQOL in retinoblastoma survivors. |
| Databáze: | OpenAIRE |
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