Bladder Self-management in the Transition to Adulthood With Spina Bifida in 3 Countries
| Autor: | Fabiana Faleiros, Seth Warschausky, William Schutt, Soraia Assad Nasbine Rabeh, Michel Marcossi Cintra, Fernanda Raphael Escobar Gimenes, Christoph Käppler |
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| Rok vydání: | 2019 |
| Předmět: |
Adult
Male Patient Transfer Michigan Adolescent Cross-sectional study Urinary Bladder 030232 urology & nephrology Context (language use) Computer-assisted web interviewing Statistics Nonparametric German 03 medical and health sciences 0302 clinical medicine Acquired immunodeficiency syndrome (AIDS) Germany Surveys and Questionnaires Health care medicine Humans Intermittent Urethral Catheterization 030212 general & internal medicine Spinal Dysraphism Advanced and Specialized Nursing Analysis of Variance business.industry Spina bifida Self-Management medicine.disease language.human_language Medical–Surgical Nursing Cross-Sectional Studies language Female Portuguese business Brazil Demography |
| Zdroj: | Journal of Wound, Ostomy & Continence Nursing. 46:321-326 |
| ISSN: | 1071-5754 |
| DOI: | 10.1097/won.0000000000000545 |
| Popis: | PURPOSE The purpose of this study was to evaluate bladder self-management in transition to adult care for patients with spina bifida (SB) in 3 countries with similar clinical practice and different social, cultural, and economic milieu. STUDY DESIGN Cross-sectional study. SUBJECTS AND SETTING The sample comprised 90 participants: 27 reside in Brazil, 36 reside in Germany, and 27 reside in the United States. Demographic characteristics of the sample are based on country. The distribution of sex in the Brazilian sample was 18 males and 9 females, the German group had 11 males and 25 females, and the United States group had 8 males and 19 females. The age range of the cumulative sample was 13 to 29 years. The age of the German sample (mean 23.56, standard deviation [SD] 4.60 years) was significantly higher (analysis of variance, F(2, 87) = 13.62, P < .001) than the other 2 groups (Brazil mean 20.56 years, SD 5.24; US mean 19.44 years, SD 4.70). METHODS Demographic, clinical, and social variable data were collected via an online questionnaire distributed to multiple regions of Germany and a multidisciplinary myelomeningocele clinic at the University of Michigan in the Midwestern United States. In Brazil, participants completed a printed version of the survey. In Germany and the United States, an electronic version of the survey was made available online. German and English versions of the survey, originally developed in Portuguese for persons residing in Brazil, were translated and validated. RESULTS The majority of participants (94.4%) performed intermittent catheterization (IC), 76.5% performed IC independently, whereas 23.5% required assistance with IC or catheterized with aids (handles, leg spreaders, and penis or labia holder). There were no statistically significant group differences in independent self-catheterization by gender. There were significant national group differences in level of lesion (P = .016), use of shunt (P = .012), and medication for bladder management (P < .001). Among participants 18 years and older, there were significantly higher levels of education in the German and the US samples than in the Brazilian sample (P < .001). CONCLUSIONS Although there were national group differences in medical characteristics and management of SB, differences in independent self-catheterization were not significant. Findings suggest that support from family/caregivers and health care providers appears to facilitate transition to independent self-care, regardless of national context. |
| Databáze: | OpenAIRE |
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