Health care and patients' education in a European inflammatory bowel disease inception cohort:An ECCO-EpiCom study
| Autor: | Jens Frederik Dahlerup, Peter L. Lakatos, Colm O'Morain, K. Ladefoged, Pia Munkholm, Martin Bortlik, Dana Duricova, K.H. Katsanos, Johan Burisch, Pia Manninen, G. Ragnarsson, Yaroslava Zhulina, Ebbe Langholz, Svetlana Turcan, Olga Shonová, Susanne Krabbe, Einar Bjornsson, Niels C Pedersen, P. Politi, A. Santini, Y. Houston, Vibeke Andersen, Doron Schwartz, Limas Kupčinskas, D. Martinez-Ares, Jonas Halfvarson, Inna Nikulina, Shmuel Odes, Gediminas Kiudelis, Silvija Čuković-Čavka, Shaji Sebastian, Z. Vegh, Y. Bailey, Naila Arebi, L. Sanromán, Sven Almer, Nikša Turk, Elena Belousova, E.V. Tsianos, Pekka Collin, Daniela Lazăr, Niels Thorsgaard, Adrian Goldis, Riina Salupere, L. Barros, Fernando Magro, J. Olsen, I. Kaimakliotis, Jens Kjeldsen, K R Nielsen |
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| Jazyk: | angličtina |
| Rok vydání: | 2014 |
| Předmět: |
Adult
Male medicine.medical_specialty Time Factors Adolescent Population Alternative medicine Population based Population-based Inflammatory bowel disease Gastroenterology Cohort Studies Young Adult Patient Education as Topic Internal medicine Surveys and Questionnaires Health care Inception cohort medicine Humans Europe Eastern education Aged Quality of Health Care Aged 80 and over education.field_of_study business.industry General Medicine Middle Aged medicine.disease Inflammatory Bowel Diseases INCEPTION COHORT Eastern european Europe Patient Satisfaction Family medicine Quality of health care Female business |
| Zdroj: | Burisch, J, Vegh, Z, Pedersen, N, Čuković-Čavka, S, Turk, N, Kaimakliotis, I, Duricova, D, Bortlik, M, Shonová, O, Thorsgaard, N, Krabbe, S, Andersen, V, Dahlerup, J F, Kjeldsen, J, Salupere, R, Olsen, J, Nielsen, K R, Manninen, P, Collin, P, Katsanos, K H, Tsianos, E V, Ladefoged, K, Ragnarsson, G, Björnsson, E, Bailey, Y, O'Morain, C, Schwartz, D, Odes, S, Politi, P, Santini, A, Kiudelis, G, Kupcinskas, L, Turcan, S, Magro, F, Barros, L, Lazar, D, Goldis, A, Nikulina, I, Belousova, E, Sanromán, L, Martinez-Ares, D, Almer, S, Zhulina, Y, Halfvarson, J, Arebi, N, Houston, Y, Sebastian, S, Langholz, E, Lakatos, P L & Munkholm, P 2014, ' Health care and patients' education in a European inflammatory bowel disease inception cohort : An ECCO-EpiCom study ', Journal of Crohn's and Colitis, vol. 8, no. 8, pp. 811-818 . https://doi.org/10.1016/j.crohns.2013.12.023 Burisch, J, Vegh, Z, Pedersen, N, Cuković-Čavka, S, Turk, N, Kaimakliotis, I, Duricova, D, Bortlik, M, Shonová, O, Thorsgaard, N, Krabbe, S, Andersen, V, Dahlerup, J F, Kjeldsen, J, Salupere, R, Olsen, J, Nielsen, K R, Manninen, P, Collin, P, Katsanos, K H, Tsianos, E V, Ladefoged, K, Ragnarsson, G, Björnsson, E, Bailey, Y, O'Morain, C, Schwartz, D, Odes, S, Politi, P, Santini, A, Kiudelis, G, Kupcinskas, L, Turcan, S, Magro, F, Barros, L, Lazar, D, Goldis, A, Nikulina, I, Belousova, E, Sanromán, L, Martinez-Ares, D, Almer, S, Zhulina, Y, Halfvarson, J, Arebi, N, Houston, Y, Sebastian, S, Langholz, E, Lakatos, P L, Munkholm, P & EpiCom Group 2014, ' Health care and patients' education in a European inflammatory bowel disease inception cohort : An ECCO-EpiCom study ', Journal of Crohn's and Colitis, vol. 8, no. 8, pp. 811-818 . https://doi.org/10.1016/j.crohns.2013.12.023 |
| DOI: | 10.1016/j.crohns.2013.12.023 |
| Popis: | BACKGROUND AND AIMS: The EpiCom study and inception cohort was initiated in 2010 in 31 centers from 14 Western and 8 Eastern European countries, covering a 10.1million person background population. Our aim was to investigate whether there is a difference between Eastern and Western Europe in health care and education of patients with inflammatory bowel disease (IBD).METHODS: A quality of care (QoC) questionnaire was developed in the EpiCom group consisting of 16 questions covering 5 items: time interval between the onset of symptoms and diagnosis, information, education, empathy and access to health care providers.RESULTS: Of 1,515 patients, 947 (217 east/730 west) answered the QoC questionnaire. Only 23% of all patients had knowledge about IBD before diagnosis. In Eastern Europe, significantly more patients searched out information about IBD themselves (77% vs. 68%, pCONCLUSION: Health care differed significantly between Eastern and Western Europe in all items, but satisfaction rates were high in both geographic regions. Because of the low awareness and the rising incidence of IBD, general information should be the focus of patient organizations and medical societies. In Western Europe IBD nurses play a very important role in reducing the burden of patient management. |
| Databáze: | OpenAIRE |
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