Caregiver Social Status and Health-Related Quality of Life in Neurologically Impaired Children on Home Enteral Nutrition
| Autor: | Angelo Selicorni, Claudio Romano, Barbara Parma, Valeria Dipasquale, Silvia Salvatore, Marco Ventimiglia, Simone Maria Calogero Gramaglia, Chiara Armano, Caterina Funari |
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| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
Parents
Gerontology Higher education Mothers neurological impairment Affect (psychology) Children Enteral nutrition Health-related quality of life Home enteral nutrition Neurological impairment Social status Article Cohort Studies 03 medical and health sciences 0302 clinical medicine Quality of life children Surveys and Questionnaires 030225 pediatrics Humans Medicine enteral nutrition TX341-641 Child children enteral nutrition health-related quality of life home enteral nutrition neurological impairment social status Health related quality of life Nutrition and Dietetics business.industry Nutrition. Foods and food supply social status health-related quality of life Cross-Sectional Studies Parenteral nutrition Caregivers Psychological Distance Cohort Quality of Life home enteral nutrition Marital status business 030217 neurology & neurosurgery Food Science |
| Zdroj: | Nutrients, Vol 13, Iss 1928, p 1928 (2021) Nutrients Volume 13 Issue 6 |
| ISSN: | 2072-6643 |
| Popis: | We aimed to investigate the association between caregiver social status and health-related quality of life (HRQoL) in children with neurological impairment (NI) on home enteral nutrition (HEN). This was an ancillary study of a multicenter, cross-sectional study which explored HRQoL in 75 NI children on HEN. All the caregivers from the original cohort were contacted, and data on education level, occupation and marital status were collected. The association between social status and HRQoL was investigated using a multiple Poisson Generalized Linear Model. In total, 93 caregivers were included, responsible for the care of 71 children. The caregivers of four children of the original cohort did not answer the questionnaire. Mothers with high-level education presented lower HRQoL in comparison to mothers with low-level (β: −5.97 95% CI −11.51, −0.10 p = 0.027) or medium-level education (β: 4.85 95% CI −9.87, 0.53 p = 0.044). The analysis of the subgroup of cases in which the main caregiver was represented by both parents gave similar findings, with education level of the father being negatively correlated with HRQoL. Our data showed that higher education level may negatively affect quality of life of caregivers of NI children. This could be helpful in identifying at-risk families and addressing supportive efforts. |
| Databáze: | OpenAIRE |
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