Anticipating Needs at End of Life in Narratives Related by People Living With HIV/AIDS in Appalachia
| Autor: | Joanne M. Hall, Sadie P. Hutson, Frankie West |
|---|---|
| Rok vydání: | 2018 |
| Předmět: |
Adult
Male Rural Population Social stigma Social Stigma Stigma (botany) Narrative inquiry 03 medical and health sciences Social support 0302 clinical medicine Health care Medicine Humans Narrative 030212 general & internal medicine Social isolation Acquired Immunodeficiency Syndrome Appalachian Region Health Services Needs and Demand Terminal Care 030505 public health business.industry Social Support Gender studies General Medicine Middle Aged Social Isolation Socioeconomic Factors Female medicine.symptom 0305 other medical science business Appalachia |
| Zdroj: | The American journal of hospicepalliative care. 35(7) |
| ISSN: | 1938-2715 |
| Popis: | As part of a mixed methods study determining end-of-life and advanced care planning needs in southern Appalachia, a narrative analysis was done of stories told in interviews of 8 selected participants using transcript data. Narratives were fraught with contradiction and paradox. Tensions were evident about living in Appalachia, the Bible Belt, and an area wherein distances are long and community rejection can occur as news travels quickly. The primary finding was that stigma, from several sources, and shrinking circles of social support for people living with HIV/AIDS, all of whom were in treatment, combined to create a sense of solitariness. Narratives were fraught with tensions, contradictions, and paradoxes. Living in Appalachia, the Bible Belt, and an area wherein distances are long and community rejection can occur as news travels quickly. The rejection-based religiously based stigma was often predicated on stereotypes about sexual behavior and illicit drug use. Diagnosis was a key turning point after which many spiraled downward financially and socially. Implications for research and advanced care planning are included. |
| Databáze: | OpenAIRE |
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