The PURPLE N study: objective and perceived nutritional status in children and adolescents with cerebral palsy
| Autor: | Andras, Fogarasi, Elisa, Fazzi, Ana R P, Smorenburg, Maria, Mazurkiewicz-Beldzinska, Argirios, Dinopoulos, Alena, Pobiecka, Dea, Schröder-van den Nieuwendijk, Josef, Kraus, Hasan, Tekgül, Maria, Koutsaki, Giovanni, Baranello, Simona, Bertoli, Elisa, Caramaschi, Duccio Maria, Cordelli, Ramona, De Amicis, Maria Luisa, Forchielli, Azzurra, Guerra, Althea, Lividini, Maddalena, Marchiò, Andrea, Rossi, Dea Schröder-van den, Nieuwendijk, Jędrzej, Fliciński, Barbara, Gurda, Anna, Lemska, Agnieszka, Matheisel, Zuzanna, Niwinska, Małgorzata, Pawłowicz, Agnieszka, Sawicka, Barbara, Steinborn, Marta, Szmuda, Anna, Winczewska-Wiktor, Marta, Zawadzka, Ebru, Arhan, Kursad, Aydin, Erhan, Bayram, Kursat Bora, Carman, Pinar, Edem, Deniz, Ertem, Özben Akıncı, Goktas, Serdal, Gungor, Goknur, Haliloglu, Aydan, Kansu, Mustafa, Kömür, Akmer, Mutlu, Ceyda Tuna, Kırsaçlıoğlu, Çetin, Okuyaz, Bilge, Özgör, Yesim, Ozturk, Safiye Gunes, Sager, Esra, Sarıgeçili, Mukadder Ayse, Selimoglu, Hepsen Mine Öztürk, Serin, Serap Tıraş, Teber, Gülten, Thomas, Dilsad, Turkdogan, Burcu, Volkan, Coşkun, Yarar, Sanem Keskin, Yilmaz |
|---|---|
| Přispěvatelé: | Fogarasi A., Fazzi E., Smorenburg A.R.P., Mazurkiewicz-Beldzinska M., Dinopoulos A., Pobiecka A., Schroder-van den Nieuwendijk D., Kraus J., Tekgul H, and the PUrple study group Giovanni Baranello, Simona Bertoli, Elisa Caramaschi, Duccio Maria Cordelli, Ramona De Amici, Maria Luisa Forchielli, Azzurra Guerra, Althea Lividini, Maddalena Marchi, Andrea Rossi, Dea Schr€oder-van den Nieuwendijk, JeR drzej Flicinsk, Barbara Gurda, Anna Lemska, Agnieszka Matheisel, Maria Mazurkiewicz-Beldzinska, Zuzanna Niwinska, Małgorzata Pawłowicz, Agnieszka Sawicka, Barbara Steinborn, Marta Szmuda, Anna Winczewska-Wiktor, Marta Zawadzka: Alena Pobiecka, Ebru Arhan, Erhan Bayram, Eskis ehir Osmangazi, Pinar Edem, Deniz Ertem, €Ozben Akı ncı Gokta, Serdal Gungor, Goknur Haliloglu, Aydan Kansu, Mustafa K€om€ur, Akmer Mutlu, Ceyda Tuna Kırsac lıoglu, Cetin Okuyaz, Bilge €Ozg€or, Yesim Ozturk, Safiye Gunes Sagel, Esra Sarıgec ili, Mukadder Ayse Selimoglu, Hepsen Mine €Ozt€urk, Serap Tı ras Teber, Hasan Tekg€ul, G€ulten Thoma, Dilsad Turkdogan, Burcu Volkan, Coskun Yarar, Sanem Keskin Yilmaz. |
| Jazyk: | angličtina |
| Rok vydání: | 2022 |
| Předmět: |
Gerontology
Body-Composition System Referral genetic structures Adolescent Physical-Activity Cerebral palsy concerns feeding nutrition perceived nutritional status medicine.medical_treatment Nutritional Status Growth Continuous variable Gross Motor Function Surveys and Questionnaires medicine Humans Child Ability Rehabilitation business.industry Malnutrition People Gross Motor Function Classification System Nutritional status Anthropometry medicine.disease Reliability Preschool-Aged Children Clinical trial Caregivers concern business Classify |
| Popis: | Purpose: To obtain information on characteristics, management, current objective nutritional status and perception of nutritional status of children with cerebral palsy (CP) from healthcare professionals (HCPs) and caregivers. Materials and methods: A detailed survey of several items on eight main topics (general characteristics, motor function, comorbidities, therapies, anthropometry, feeding mode and problems and perceived nutritional status) was developed and tested for the study. Correlation between nutritional status and Gross Motor Function Classification System (GMFCS) levels was assessed using continuous variables (Z-scores for weight-for-age, height-for-age, weight-for-height, and body mass index-for-age), and categorical variables (being malnourished, stunted, or wasted). HCP and caregiver perceptions of the child's nutritional status as well as agreement between perceived and objective nutritional status and agreement between perceived nutritional status and concerns about the nutritional status were analyzed. Results: Data were available for 497 participants from eight European countries. Poorer nutritional status was associated with higher (more severe) GMFCS levels. There was minimal agreement between perceived and objective nutritional status, both for HCPs and caregivers. Agreement between HCP and caregiver perceptions of the child's nutritional status was weak (weighted kappa 0.56). However, the concerns about the nutritional status of the child were in line with the perceived nutritional status. Conclusions: The risk of poor nutritional status is associated with more severe disability in children and adolescents with CP. There is a mismatch between HCP and caregiver perceptions of participants' nutritional status as well as between subjective and objective nutritional status. Our data warrant the use of a simple and objective screening tool in daily practice to determine nutritional status in children and adolescents with CP. Danone Nutricia Research, Utrecht, the Netherlands; Nutricia Advanced Medical Nutrition in Czech Republic; Nutricia Advanced Medical Nutrition in Greece; Nutricia Advanced Medical Nutrition in Hungary; Nutricia Advanced Medical Nutrition in Italy; Nutricia Advanced Medical Nutrition in Poland; Nutricia Advanced Medical Nutrition in Slovakia; Nutricia Advanced Medical Nutrition in The Netherlands; Nutricia Advanced Medical Nutrition in Turkey; Danone Nutricia Research This study was sponsored by Danone Nutricia Research, Utrecht, the Netherlands. Local financial support was provided by the local business units of Nutricia Advanced Medical Nutrition in Czech Republic, Greece, Hungary, Italy, Poland, Slovakia, The Netherlands, and Turkey. Medical writing support was provided by Tim Kelly, Medi-Kelsey Limited, funded by Danone Nutricia Research. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|