The subjective experience of living with haemophilia in the transition from early adolescence to young adulthood: the effect of age and the therapeutic regimen
| Autor: | Francesca Emiliani, Lelia Valdrè, Silvia Potì, Giuseppina Rodorigo, Laura Palareti |
|---|---|
| Přispěvatelé: | Potì, Silvia, Palareti, Laura, Emiliani, Francesca, Rodorigo, Giuseppina, Valdrè, Lelia |
| Jazyk: | angličtina |
| Rok vydání: | 2018 |
| Předmět: |
congenital
hereditary and neonatal diseases and abnormalities medicine.medical_specialty Haemophilia Health (social science) psychosocial support Early adolescence 030204 cardiovascular system & hematology 03 medical and health sciences 0302 clinical medicine hemic and lymphatic diseases medicine 030212 general & internal medicine chronic illne Young adult Psychiatry type of therapy lcsh:LC8-6691 Therapeutic regimen lcsh:Special aspects of education lcsh:HQ1-2044 transition medicine.disease Psychosocial support Chronic disease lcsh:The family. Marriage. Woman adolescence Psychology transitions chronic illness |
| Zdroj: | International Journal of Adolescence and Youth, Vol 23, Iss 2, Pp 133-144 (2018) |
| ISSN: | 2164-4527 0267-3843 |
| Popis: | The main aim of the research is to study how youths affected by haemophilia, a congenital hemorrhagic chronic disease, make sense of their condition, with particular reference to the transition from early adolescence to early adulthood. We administered face-to-face semi-structured interviews to 20 Italian youths with haemophilia, aged 11–25 years, in on-demand treatment or prophylaxis therapy. A thematic analysis was performed with the help of software for textual data to figure out the main topics and the role of the two selected variables in the emergence of the themes (age and type of therapy). The results highlight how the experience of suffering from haemophilia is organized around five core themes (fragmented body, intimacy, family history, autonomy, dreams), that are more or less typical of some age group or kind of treatment. These results may be useful for designing appropriate and differentiated interventions for psychosocial support. |
| Databáze: | OpenAIRE |
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