Introduction of Questionnaires for Quality of Life of Patients with Malignant Tumors of the Central Nervous System into Neurosurgical Practice in the Republic of Kazakhstan
Autor: | Aidos Doskaliyev, Raushan Auezova, Nurgul Aldiyarova, Zauresh Akhmetzhanova, Kamila Gaitova, Serik Akshulakov, Nurzhan Ryskeldiyev, Talgat Kerimbayev |
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Rok vydání: | 2016 |
Předmět: |
0301 basic medicine
Cancer Research Pediatrics medicine.medical_specialty Epidemiology MEDLINE Kazakh Neuropsychological Tests The Republic Neurosurgical Procedures Brain cancer 03 medical and health sciences 0302 clinical medicine Quality of life Surveys and Questionnaires medicine Humans Translations Brain Neoplasms business.industry Public Health Environmental and Occupational Health social sciences Guideline Kazakhstan humanities language.human_language Clinical Practice 030104 developmental biology Oncology 030220 oncology & carcinogenesis Family medicine Quality of Life language business Cohort study |
Zdroj: | Asian Pacific Journal of Cancer Prevention. 17:873-876 |
ISSN: | 1513-7368 |
Popis: | Background Studies of quality of life (QoL) of oncological patients is carried out using questionnaires approved in many international clinical studies. The European Organization for Research and Treatment of Cancer EORTC QLQ-C30 (Quality of Life Questionnary-Core 30) and its special brain cancer module EORTC QLQ-BN20 are widely used in the world neurooncologic practice. They are available in more than 80 official versions of 30 languages of the world. Previously we used the official versions in Russian, which often causes difficulty in understanding for native Kazakh language speakers, who comprise more than 60% of our respondents. This was the reason for creating a version of Kazakh language. Therefore, in 2014 for the first time the process of adaptation of questionnaires to the Kazakh language was initiated. Materials and methods The translation process of questionnaires to Kazakh language was held in accordance with the requirements of the European Organization for Research and Treatment of Cancer EORTC on QoL and consisted of the following stages: preparation - translation - pilot testing - approval. The official permission of authors and "Guideline on translation" was obtained which was developed by the working group of the EORTC on QoL. The pilot testing of EORTC QLQ-C30 and QLQ-BN20 questionnaires was conducted on the basis of the Department of Central Nervous System Pathology of the "National Centre for Neurosurgery" in patients with malignant tumors of the central nervous system. Results The official versions of the EORTC QLQ-C30 and QLQ-BN20 questionnaires in Kazakh language were introduced and adapted in practical neurosurgical operations in Kazakhstan. Conclusions The approved versions of the questionnaires in Kazakh language are now available for mainstream use on the official website EORTC.com. The versions of these questionnaires can be used in domestic cohort studies and clinical practice in the Republic of Kazakhstan. The use of these tools for assessing QoL will help professionals in the planning of individual treatment strategies and selection of the necessary therapy. |
Databáze: | OpenAIRE |
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