Patients' participation during treatment and care of breast cancer - a possibility and an imperative
| Autor: | Lena Engqvist Boman, Charlotte Silén, Kerstin Sandelin, Yvonne Wengström |
|---|---|
| Rok vydání: | 2018 |
| Předmět: |
Adult
Shared learning media_common.quotation_subject Decision Making Emotions Breast Neoplasms Respect 03 medical and health sciences 0302 clinical medicine Breast cancer Nursing Health care medicine Humans 030212 general & internal medicine Patient participation Competence (human resources) Qualitative Research media_common Aged Aged 80 and over Oncology (nursing) business.industry Disease Management General Medicine Middle Aged medicine.disease Hospitals Self Care Feeling 030220 oncology & carcinogenesis General partnership Female Patient Participation business After treatment |
| Zdroj: | European journal of oncology nursing : the official journal of European Oncology Nursing Society. 37 |
| ISSN: | 1532-2122 |
| Popis: | Purpose To explore how patients experience participation during treatment and care for breast cancer related to their understanding. Method Semi-structured individual interviews with 16 women diagnosed with breast cancer. Interpretative qualitative content analysis was performed. Results Three main themes describe patient participation. Theme 1 Respectful and personal encounters illustrates how the treatment from health care staff contributed to feelings of being “seen” as a human, a basis for participation. Theme 2 Part-owner in decision making describes the women's varied wishes of participating in treatment decisions. Theme 3 Striving to manage treatment, care and self-care concerns the need to manage self-care for well-being. Conclusions Patient participation is both a possibility and an imperative. Patients must be recognized as unique human beings with varying needs of participation. Shared learning and understanding in dialogue with health care staff is a prerequisite. A novel approach where patients and health care staff are both partners and participants is presented. Practical implication The results call for an initiation of training programs supporting pedagogical competence in staff and patients' learning in breast cancer care. Access to health care in the outpatient and the hospital settings is needed long term after treatment to support patient participation. |
| Databáze: | OpenAIRE |
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