Improving the way healthcare professionals deliver different news to families during pregnancy or at birth: a qualitative study
| Autor: | Esther Mugweni, Sabrena Jaswal, Sally Kendall, Samantha Goodliffe, Angela Emrys-Jones, Melita Walker, Cheryll Adams |
|---|---|
| Rok vydání: | 2021 |
| Předmět: |
Parents
Health Personnel media_common.quotation_subject Training intervention education Sample (statistics) Empathy Compassion Development 03 medical and health sciences 0302 clinical medicine Nursing Pregnancy medicine Humans 030212 general & internal medicine Parent-Child Relations difficult news Care Planning health care economics and organizations Qualitative Research media_common learning disability Health professionals congenital anomalies 030503 health policy & services Lived experience Infant Newborn Public Health Environmental and Occupational Health Learning disability Female communication skills medicine.symptom 0305 other medical science Psychology Delivery of Health Care Qualitative research |
| Zdroj: | Primary Health Care Research & Development |
| ISSN: | 1477-1128 1463-4236 |
| DOI: | 10.1017/s1463423620000651 |
| Popis: | Aim: To explore the lived experience of delivering or receiving news about an unborn or newborn child having a condition associated with a learning disability in order to inform the development of a training intervention for healthcare professionals. We refer to this news as different news. Background: How healthcare professionals deliver different news to parents affects the way they adjust to the situation, the wellbeing of their child and their ongoing engagement with services. This is the first study that examined the lived experience of delivering and receiving different news, in order to inform the development of training for healthcare professionals using the Theoretical Domains Framework version 2. Method: We conducted qualitative interviews with a purposive sample of 9 different parents with the lived experience of receiving different news and 12 healthcare professionals who delivered different news. It was through these descriptions of the lived experience that barriers and facilitators to effectively delivering different news were identified to inform the training programme. Data analysis was guided by Theoretical Domains Framework version 2 to identify these barriers and facilitators as well as the content of a training intervention. Findings: Receiving different news had a significant impact on parents’ emotional and mental wellbeing. They remembered how professionals described their child, the quality of care and emotional support they received. The process had a significant impact on the parent–child relationship and the relationship between the family and healthcare professionals. Delivering different news was challenging for some healthcare professionals due to lack of training. Future training informed by parents’ experiences should equip professionals to demonstrate empathy, compassion, provide a balanced description of conditions and make referrals for further care and support. This can minimise the negative psychological impact of the news, maximise psychological wellbeing of families and reduce the burden on primary care services. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|