Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider
| Autor: | John Glaser, Rebecca Fisher, Stephen Matteson, Paul Cusenza, Deven McGraw, Douglas E. Henley, Mark A. Rothstein, Kathy Hudson, Amy L. McGuire |
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| Rok vydání: | 2008 |
| Předmět: |
Medical Records Systems
Computerized medicine.diagnostic_test business.industry Genetic exceptionalism Health Policy Internet privacy Environmental resource management Health information exchange Personal Health Services United States Information protection policy Health care medicine Humans Confidentiality Genetic Testing Genetic Privacy business Computer Security Genetics (clinical) Health policy Protected health information Genetic testing |
| Zdroj: | Genetics in Medicine. 10:495-499 |
| ISSN: | 1098-3600 |
| DOI: | 10.1097/gim.0b013e31817a8aaa |
| Popis: | As clinical genetics evolves, and we embark down the path toward more personalized and effective health care, the amount, detail, and complexity of genetic/genomic test information within the electronic health record will increase. This information should be appropriately protected to secure the trust of patients and to support interoperable electronic health information exchange. This article discusses characteristics of genetic/genomic test information, including predictive capability, immutability, and uniqueness, which should be considered when developing policies about information protection. Issues related to "genetic exceptionalism"; i.e., whether genetic/genomic test information should be treated differently from other medical information for purposes of data access and permissible use, are also considered. These discussions can help guide policy that will facilitate the biological and clinical resource development to support the introduction of this information into health care. |
| Databáze: | OpenAIRE |
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