Exploring the perceptions of physicians, caregivers and families towards artificial nutrition and hydration for people in permanent vegetative state: How can a photo-elicitation method help?

Autor: Elodie Cretin, Alain Noé, Lionel Pazart, Florence Mathieu-Nicot, Pierre Decavel, Aline Chassagne, Yvan Beaussant, Aurélie Godard-Marceau, Serge Daneault, M.C. Rousseau, Damien Gabriel, Régis Aubry, Hélène Trimaille
Rok vydání: 2017
Předmět:
Male
Parenteral Nutrition
Medical Doctors
Health Care Providers
Emotions
Photo elicitation
lcsh:Medicine
Social Sciences
Nurses
Geographical locations
0302 clinical medicine
Sociology
Photography
Medicine and Health Sciences
Psychology
Medical Personnel
030212 general & internal medicine
Human Families
lcsh:Science
media_common
Multidisciplinary
Europe
Professions
Caregivers
Female
France
Social psychology
Research Article
Medical Ethics
medicine.medical_specialty
Interview
Imaging Techniques
media_common.quotation_subject
Research and Analysis Methods
03 medical and health sciences
Physicians
Reflexivity
medicine
Humans
Family
Narrative
European Union
Intensive care medicine
Set (psychology)
Nutrition
Research ethics
business.industry
Persistent Vegetative State
lcsh:R
Biology and Life Sciences
Special Interest Group
Health Care
People and Places
Introspection
lcsh:Q
Perception
Population Groupings
business
030217 neurology & neurosurgery
Zdroj: PLoS ONE
PLoS ONE, Vol 12, Iss 10, p e0186776 (2017)
ISSN: 1932-6203
Popis: The question of withdrawing artificial nutrition and hydration from people in a permanent vegetative state sparks considerable ethical and legal debate. Therefore, understanding the elements that influence such a decision is crucial. However, exploring perceptions of artificial nutrition and hydration is methodologically challenging for several reasons. First, because of the emotional state of the professionals and family members, who are facing an extremely distressing situation; second, because this question mirrors representations linked to a deep-rooted fear of dying of hunger and thirst; and third, because of taboos surrounding death. We sought to determine the best method to explore such complex situations in depth. This article aims to assess the relevance of the photo-elicitation interview method to analyze the perceptions and attitudes of health professionals and families of people in a permanent vegetative state regarding artificial nutrition and hydration. The photo-elicitation interview method consists in inserting one or more photographs into a research interview. An original set of 60 photos was built using Google Images and participants were asked to choose photos (10 maximum) and talk about them. The situations of 32 patients were explored in 23 dedicated centers for people in permanent vegetative state across France. In total, 138 interviews were conducted with health professionals and family members. We found that the photo-elicitation interview method 1) was well accepted by the participants and allowed them to express their emotions constructively, 2) fostered narration, reflexivity and introspection, 3) offered a sufficient "unusual angle" to allow participants to go beyond stereotypes and habits of thinking, and 4) can be replicated in other research areas. The use of visual methods currently constitutes an expanding area of research and this study stressed that this is of special interest to enhance research among populations facing end-of-life and ethical issues.
Databáze: OpenAIRE
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