Exploring the perceptions of physicians, caregivers and families towards artificial nutrition and hydration for people in permanent vegetative state: How can a photo-elicitation method help?
Autor: | Elodie Cretin, Alain Noé, Lionel Pazart, Florence Mathieu-Nicot, Pierre Decavel, Aline Chassagne, Yvan Beaussant, Aurélie Godard-Marceau, Serge Daneault, M.C. Rousseau, Damien Gabriel, Régis Aubry, Hélène Trimaille |
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Rok vydání: | 2017 |
Předmět: |
Male
Parenteral Nutrition Medical Doctors Health Care Providers Emotions Photo elicitation lcsh:Medicine Social Sciences Nurses Geographical locations 0302 clinical medicine Sociology Photography Medicine and Health Sciences Psychology Medical Personnel 030212 general & internal medicine Human Families lcsh:Science media_common Multidisciplinary Europe Professions Caregivers Female France Social psychology Research Article Medical Ethics medicine.medical_specialty Interview Imaging Techniques media_common.quotation_subject Research and Analysis Methods 03 medical and health sciences Physicians Reflexivity medicine Humans Family Narrative European Union Intensive care medicine Set (psychology) Nutrition Research ethics business.industry Persistent Vegetative State lcsh:R Biology and Life Sciences Special Interest Group Health Care People and Places Introspection lcsh:Q Perception Population Groupings business 030217 neurology & neurosurgery |
Zdroj: | PLoS ONE PLoS ONE, Vol 12, Iss 10, p e0186776 (2017) |
ISSN: | 1932-6203 |
Popis: | The question of withdrawing artificial nutrition and hydration from people in a permanent vegetative state sparks considerable ethical and legal debate. Therefore, understanding the elements that influence such a decision is crucial. However, exploring perceptions of artificial nutrition and hydration is methodologically challenging for several reasons. First, because of the emotional state of the professionals and family members, who are facing an extremely distressing situation; second, because this question mirrors representations linked to a deep-rooted fear of dying of hunger and thirst; and third, because of taboos surrounding death. We sought to determine the best method to explore such complex situations in depth. This article aims to assess the relevance of the photo-elicitation interview method to analyze the perceptions and attitudes of health professionals and families of people in a permanent vegetative state regarding artificial nutrition and hydration. The photo-elicitation interview method consists in inserting one or more photographs into a research interview. An original set of 60 photos was built using Google Images and participants were asked to choose photos (10 maximum) and talk about them. The situations of 32 patients were explored in 23 dedicated centers for people in permanent vegetative state across France. In total, 138 interviews were conducted with health professionals and family members. We found that the photo-elicitation interview method 1) was well accepted by the participants and allowed them to express their emotions constructively, 2) fostered narration, reflexivity and introspection, 3) offered a sufficient "unusual angle" to allow participants to go beyond stereotypes and habits of thinking, and 4) can be replicated in other research areas. The use of visual methods currently constitutes an expanding area of research and this study stressed that this is of special interest to enhance research among populations facing end-of-life and ethical issues. |
Databáze: | OpenAIRE |
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