Experiences and supportive care needs of UK patients with pancreatic cancer: a cross-sectional questionnaire survey
| Autor: | A Tallett, Harriet Hay, Alan J Poots, Jo Brett, Anna Perris, Zahir Soonawalla, Cara Witwicki, Steve Sizmur, Eila Watson |
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| Rok vydání: | 2019 |
| Předmět: |
Male
medicine.medical_specialty media_common.quotation_subject pancreatic cancer Psychological intervention 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) Cost of Illness Patient Education as Topic Patient experience medicine Humans Original Research media_common Physician-Patient Relations patient experience business.industry Communication Palliative Care Social Support Cancer Questionnaire General Medicine medicine.disease Health Surveys United Kingdom care quality Pancreatic Neoplasms Sadness Cross-Sectional Studies Oncology Feeling Patient Satisfaction 030220 oncology & carcinogenesis Family medicine surveys and questionnaires Quality of Life supportive care needs Anxiety Female 030211 gastroenterology & hepatology medicine.symptom business Decision Making Shared |
| Zdroj: | BMJ Open |
| ISSN: | 2044-6055 |
| DOI: | 10.1136/bmjopen-2019-032681 |
| Popis: | ObjectivesPatients diagnosed with pancreatic cancer have the poorest survival prognosis of any cancer. This survey aimed to describe their experiences of care and supportive care needs to inform future service provision.DesignCross-sectional questionnaire survey of patients with pancreatic cancer in the UK.SettingIndividuals at any stage along the care pathway were recruited via five National Health Service sites in the UK, and online, from January to June 2018.Participants274 individuals completed the questionnaire (78% (215) were completed online). Approximately half of participants were diagnosed within the last year (133/274). Of 212 providing gender details, 82 were male and 130 were female. Ninety per cent (192/213) described themselves as White British.Primary outcome measuresExperiences of communication and information; involvement in treatment decisions; supportive care needs.ResultsCommunication with, and care received from, clinical staff were generally reported positively. However, 29% (75/260) of respondents did not receive enough information at diagnosis, and 10% (25/253) felt they were not involved in decisions about their treatment, but would have liked to be. Supportive care needs were greatest in psychological and physical/daily living domains. 49% (108/221) of respondents reported one or more moderate/high unmet needs within the last month, of which the most commonly reported were: dealing with uncertainty about the future; fears about the cancer spreading; not being able to do things they used to; concerns about those close to them; lack of energy; anxiety; feelings of sadness and feeling down/depressed. Experiences were poorer, and unmet supportive care needs greater, in patients with unresectable disease.ConclusionsPatients with pancreatic cancer have unmet information and support needs across the cancer trajectory. Psychological and physical support appears to be the biggest gap in care. Needs should be assessed and supportive care interventions implemented from the point of diagnosis, and monitored regularly to help patients live as good a quality of life as possible. |
| Databáze: | OpenAIRE |
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