Development of a patient decision aid for patients with breast cancer who consider immediate breast reconstruction after mastectomy
| Autor: | Martine A. van Huizum, Klemens Karssen, Quinten P Q Ruhé, Eveline M. A. Bleiker, Jacqueline A Ter Stege, Daniela E E Hahn, Eveline M L Corten, Nikola A N Kimmings, Hester S. A. Oldenburg, Daniela B Raphael, Kerry A. Sherman, Wies Maarse, Irene S Krabbe-Timmerman, Arjen J. Witkamp, Menno Huikeshoven, Frederieke van Duijnhoven, Leonie A. E. Woerdeman |
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| Přispěvatelé: | Radiotherapie, RS: GROW - R3 - Innovative Cancer Diagnostics & Therapy, Plastic and Reconstructive Surgery and Hand Surgery |
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
Medicine (General)
INFORMATION SATISFACTION SURGERY information needs Mammaplasty medicine.medical_treatment Decision Making education Breast Neoplasms Information needs GOALS STYLE Decision Support Techniques DELIVERY R5-920 Breast cancer breast cancer SDG 3 - Good Health and Well-being Nursing QUALITY-OF-LIFE patient decision aid medicine Humans Decision-making Mastectomy COMPLICATIONS Motivation business.industry Breast surgeons Public Health Environmental and Occupational Health WOMEN Usability immediate breast reconstruction EFFICACY medicine.disease EXPERIENCES Needs assessment Female Public aspects of medicine RA1-1270 business Breast reconstruction |
| Zdroj: | Health Expectations, 25(1), 232-244. WILEY Health Expectations, Vol 25, Iss 1, Pp 232-244 (2022) Health Expectations, 25(1), 232-244. Wiley Health Expectations, 25(1), 232-244. Wiley-Blackwell Publishing Ltd |
| ISSN: | 1369-6513 |
| Popis: | Purpose: The aim of this study was to develop a patient decision aid (pDA) that could support patients with breast cancer (BC) in making an informed decision about breast reconstruction (BR) after mastectomy. Methods: The development included four stages: (i) Establishment of a multidisciplinary team; (ii) Needs assessment consisting of semi-structured interviews in patients and a survey among healthcare professionals (HCPs); (iii) Creation of content, design and technical system; and (iv) Acceptability and usability testing using a think-aloud approach in patients and interviews among HCPs and representatives of the Dutch Breast Cancer Patient Organization. Results: From the needs assessment, three themes were identified: Challenging period to make a decision, Diverse motivations for a personal decision and Information needed to make a decision about BR. HCPs valued the development of a pDA, especially to prepare patients for consultation. The pDA that was developed contained three parts: first, a consultation sheet for oncological breast surgeons to introduce the choice; second, an online tool including an overview of reconstructive options, the pros and cons of each option, information on the consequences of each option for daily life, exercises to clarify personal values and patient stories; and third, a summary sheet with patients’ values, preferences and questions to help inform and guide the discussion between the patient and her plastic surgeon. The pDA was perceived to be informative, helpful and easy to use by patients and HCPs. Conclusion: Consistent with information needs, a pDA was developed to support patients with BC who consider immediate BR in making an informed decision together with their plastic surgeon. Patient or Public Contribution: Patients participated in the needs assessment and in acceptability and usability testing. |
| Databáze: | OpenAIRE |
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