Brief Report: Preliminary Findings from a Pilot Health Care Transition Education Intervention for Adolescents and Young Adults with Special Health Care Needs
Autor: | Janet Hess, Diane M. Straub |
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Rok vydání: | 2010 |
Předmět: |
Adult
Male Gerontology medicine.medical_specialty Adolescent Pilot Projects Health literacy Special education Health Services Accessibility Interviews as Topic Patient Education as Topic Health care Developmental and Educational Psychology Humans Medicine Curriculum Health Services Needs and Demand Medical education business.industry Public health Continuity of Patient Care Focus group Readability Pediatrics Perinatology and Child Health Female Health education business Delivery of Health Care Needs Assessment |
Zdroj: | Journal of Pediatric Psychology. 36:172-178 |
ISSN: | 1465-735X 0146-8693 |
DOI: | 10.1093/jpepsy/jsq091 |
Popis: | All correspondence concerning this article should be addressed to Janet Hess, MPH, CHES, Universityof South Florida, Department of Pediatrics, 2 Tampa General Circle, 5th Floor, Tampa, FL, 33606, USA.E-mail: jhess@health.usf.eduReceived January 12, 2009; revisions received September 8, 2010; accepted September 9, 2010Objective To assess acceptability and feasibility of a school-based health care transition educationintervention designed to equip adolescents and young adults (A/YA) who have special health care needs withimportant health literacy, self-advocacy, and self-determination skills. Methods A qualitative researchapproach was used to assess a 40-hr curriculum implemented with 137 A/YA in 13 high school specialeducation classes. Three focus groups were conducted with 15 students and 7 educators. Participants werequestioned about perceived relevance, readability, interest, ease of implementation and completeness of thecurriculum. Results All focus group participants said the curriculum was highly relevant and valuable.Teachers reported little difficulty with ease of implementation, though the reading level appeared high forsome students. Conclusions This intervention model shows promise for empowering A/YA with specialhealth care needs to become more independent in managing their health care, and warrants furtherdevelopment and evaluation. The curriculum is available at http://health.usf.edu/medicine/pediatrics/ad_med/resources.htm.Key words adolescents; chronic illness; developmental disabilities; educational interventions; health beha-viour; health education. |
Databáze: | OpenAIRE |
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