Understanding the experiences of self-injurious behavior in autism spectrum disorder: Implications for monitoring technology design
| Autor: | Kristine D. Cantin-Garside, Susan W. White, Maury A. Nussbaum, Diogo M. G. Fortes, Rupa S. Valdez, Sunwook Kim, Chung Do Kim |
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| Rok vydání: | 2020 |
| Předmět: |
Adult
Male Adolescent Autism Spectrum Disorder Transferability Health Informatics Research and Applications Developmental psychology Interviews as Topic 03 medical and health sciences Young Adult 0302 clinical medicine medicine Humans 0501 psychology and cognitive sciences 030212 general & internal medicine Monitoring methods Child Design technology 05 social sciences Stakeholder Monitoring system social sciences Focus Groups medicine.disease Focus group Consumer Health Informatics Caregivers Autism spectrum disorder Evaluation Studies as Topic Educational Personnel Female Psychology Consumer health informatics Attitude to Health Self-Injurious Behavior 050104 developmental & child psychology |
| Zdroj: | J Am Med Inform Assoc |
| ISSN: | 1527-974X |
| Popis: | Objective Monitoring technology may assist in managing self-injurious behavior (SIB), a pervasive concern in autism spectrum disorder (ASD). Affiliated stakeholder perspectives should be considered to design effective and accepted SIB monitoring methods. We examined caregiver experiences to generate design guidance for SIB monitoring technology. Materials and Methods Twenty-three educators and 16 parents of individuals with ASD and SIB completed interviews or focus groups to discuss needs related to monitoring SIB and associated technology use. Results Qualitative content analysis of participant responses revealed 7 main themes associated with SIB and technology: triggers, emotional responses, SIB characteristics, management approaches, caregiver impact, child/student impact, and sensory/technology preferences. Discussion The derived themes indicated areas of emphasis for design at the intersection of monitoring and SIB. Systems design at this intersection should consider the range of manifestations of and management approaches for SIB. It should also attend to interactions among children with SIB, their caregivers, and the technology. Design should prioritize the transferability of physical technology and behavioral data as well as the safety, durability, and sensory implications of technology. Conclusions The collected stakeholder perspectives provide preliminary groundwork for an SIB monitoring system responsive to needs as articulated by caregivers. Technology design based on this groundwork should follow an iterative process that meaningfully engages caregivers and individuals with SIB in naturalistic settings. |
| Databáze: | OpenAIRE |
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