COPESCD — An Online Community Supporting Families After Sudden Cardiac Death in the Young: A Protocol for a Pilot Study

Autor:	Yeates, L, Gardner, K, Do, J, van den Heuvel, L, Leslie, F, Semsarian, C, McEwen, A, Adlard, L, Ingles, J
Rok vydání:	2022
Předmět:	Pulmonary and Respiratory Medicine Cardiovascular System & Hematology Cardiology and Cardiovascular Medicine 1102 Cardiorespiratory Medicine and Haematology 1117 Public Health and Health Services
Zdroj:	Heart, Lung and Circulation. 31:S20
ISSN:	1443-9506
DOI:	10.1016/j.hlc.2022.04.044
Popis:	Sudden cardiac death (SCD) is a devastating complication of genetic heart diseases. The psychological impact on surviving family members is significant and lifelong. Previous needs analyses found medical and psychological needs are of high importance but remain unmet in some cases. We used co-design focus groups with stakeholders (healthcare professionals and family members) to develop a support intervention: COPESCD - an online community supporting families after SCD in the young. The intervention contains two parts: (1) a website and (2) a series of four, online support sessions (covering: general information, uncertainty, grief and loss, and family coping).
Databáze:	OpenAIRE
Externí odkaz:	https://explore.openaire.eu/search/publication?articleId=doi_dedup___::909591787fd069b82354a949a052c22e https://doi.org/10.1016/j.hlc.2022.04.044 Zobrazit plný text záznamu Full Text from ScienceDirect