Development of an advance directive 'communication tool' relevant for patients with advanced cancer in six European countries

Autor:	Arnfeldt, C.M., Groenvold, M., Johnsen, A.T., Červ, B., Deliens, L., Dunleavy, L., van der Heide, A., Kars, M.C., Lunder, U., Miccinesi, G., Pollock, K., Rietjens, J.A.C., Seymour, J.
Přispěvatelé:	Public Health, Family Medicine and Chronic Care, End-of-life Care Research Group
Jazyk:	angličtina
Rok vydání:	2022
Předmět:	Multidisciplinary Patients Communication Public Health Environmental and Occupational Health ACTION trial Advance Care Planning SDG 3 - Good Health and Well-being Advanced cancer Neoplasms Physicians oncology Medicine and Health Sciences advance care planning programme Humans six European countries Advance Directives
Zdroj:	Arnfeldt, C M, Groenvold, M, Johnsen, A T, Červ, B, Deliens, L, Dunleavy, L, van der Heide, A, Kars, M C, Lunder, U, Miccinesi, G, Pollock, K, Rietjens, J A C, Seymour, J & ACTION consortium 2022, ' Development of an advance directive 'communication tool' relevant for patients with advanced cancer in six European countries : Experiences from the ACTION trial ', PLoS ONE, vol. 17, no. 7, e0271919, pp. 1-18 . https://doi.org/10.1371/journal.pone.0271919 PLoS ONE, 17(7 July):e0271919. Public Library of Science PLOS ONE
ISSN:	1932-6203
Popis:	BackgroundThe ACTION trial evaluated the effect of a modified version of the Respecting Choices´ advance care planning programme in patients with advanced cancer in six European countries. For this purpose, an advance directive acceptable for all six ACTION countries to be used for documenting the wishes and preferences of patients and as a communication tool between patients, their caregivers and healthcare staff, was needed.AimTo describe the development of a multinational cancer specific advance directive, the ´My Preferences form´, which was first based on the 2005 Wisconsin ‘Physician Orders of Life Sustaining Treatment´ Form, to be used within the ACTION trial.MethodsFramework analysis of all textual data produced by members of the international project team during the development of the ACTION advance directives (e.g. drafts, emails, meeting minutes…).Setting/participantsACTION consortium members (N = 28) with input from clinicians from participating hospitals (N = 13) and ´facilitators´ (N = 8) who were going to deliver the intervention.ResultsTen versions of the ACTION advance directive, the ´My Preferences form´, were developed and circulated within the ACTION consortium. Extensive modifications took place; removal, addition, modification of themes and modification of clinical to lay terminology. The result was a thematically comprehensive advance directive to be used as a communication tool across the six European countries within the ACTION trial.ConclusionThis article shows the complex task of developing an advance directive suitable for cancer patients from six European countries; a process which required the resolution of several cross cultural differences in law, ethics, philosophy and practice. Our hope is that this paper can contribute to a deeper conceptual understanding of advance directives, their role in supporting decision making among patients approaching the end of life and be an inspiration to others wishing to develop a disease-specific advance directive or a standardised multinational advance directive.
Databáze:	OpenAIRE
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