Providing high-quality care remotely to patients with rare bone diseases during COVID-19 pandemic
| Autor: | Laura Trespidi, M. B. Michelis, L. A. Nasto, V. Landoni, L. Panzeri, Andrea Vianello, M. L. Brandi, Michaela Veronika Gonfiantini, Sandro Giannini, Paolo Fraschini, Armando Magrelli, Maria Francesca Bedeschi, P. Berardi, Giovanni Adami, Davide Gatti, Giuseppe Zampino, A. Scopinaro, E. Castagnola, G. I. Baroncelli, E. Brizola, S. Boero, L. Casareto, Giovanna Mantovani, Luca Sangiorgi, E. Pianigiani |
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| Přispěvatelé: | Brizola, E, Adami, G, Baroncelli, G I, Bedeschi, M F, Berardi, P, Boero, S, Brandi, M L, Casareto, L, Castagnola, E, Fraschini, P, Gatti, D, Giannini, S, Gonfiantini, M V, Landoni, V, Magrelli, A, Mantovani, G, Michelis, M B, Nasto, L A, Panzeri, L, Pianigiani, E, Scopinaro, A, Trespidi, L, Vianello, A, Zampino, G, Sangiorgi, L |
| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: |
0301 basic medicine
Bone disease lcsh:Medicine 030105 genetics & heredity Care 0302 clinical medicine Pregnancy Pandemic Medicine Pharmacology (medical) Viral Position Statement Child Genetics (clinical) Remote General Medicine 2019-nCoV Bone diseases Coronavirus COVID-19 ERN Rare diseases Aged Algorithms Bone Diseases Coronavirus Infections Female Humans Pandemics Pneumonia Viral Rare Diseases Remote Consultation Wounds and Injuries Betacoronavirus Settore MED/38 - PEDIATRIA GENERALE E SPECIALISTICA Medical emergency Health care quality Hand washing Coronavirus disease 2019 (COVID-19) Coronaviru 03 medical and health sciences business.industry SARS-CoV-2 lcsh:R Outbreak Pneumonia medicine.disease business Rare disease 030217 neurology & neurosurgery |
| Zdroj: | Orphanet Journal of Rare Diseases Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-10 (2020) |
| Popis: | During the COVID-19 outbreak, the European Reference Network on Rare Bone Diseases (ERN BOND) coordination team and Italian rare bone diseases healthcare professionals created the “COVID-19 Helpline for Rare Bone Diseases” in an attempt to provide high-quality information and expertise on rare bone diseases remotely to patients and healthcare professionals. The present position statement describes the key characteristics of the Helpline initiative, along with the main aspects and topics that recurrently emerged as central for rare bone diseases patients and professionals. The main topics highlighted are general recommendations, pulmonary complications, drug treatment, trauma, pregnancy, children and elderly people, and patient associations role. The successful experience of the “COVID-19 Helpline for Rare Bone Diseases” launched in Italy could serve as a primer of gold-standard remote care for rare bone diseases for the other European countries and globally. Furthermore, similar COVID-19 helplines could be considered and applied for other rare diseases in order to implement remote patients’ care. |
| Databáze: | OpenAIRE |
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