Relatives' level of satisfaction with advanced cancer care in Greenland:a mixed methods study
| Autor: | Per Sjøgren, Lise Hounsgaard, Mikaela Augustussen, Helle Ussing Timm, Michael Lynge Pedersen |
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| Jazyk: | angličtina |
| Rok vydání: | 2017 |
| Předmět: |
Male
Health (social science) Palliative care Epidemiology Cross-sectional study Hospital bed Greenland Personal Satisfaction rural and remote areas 0302 clinical medicine Neoplasms Neoplasms/therapy Medicine Prospective Studies 030212 general & internal medicine Prospective cohort study Arctic Regions Palliative Care satisfaction General Medicine Middle Aged Inuit 030220 oncology & carcinogenesis Female Psychosocial Inclusion (education) Research Article Adult lcsh:Arctic medicine. Tropical medicine lcsh:RC955-962 Decision Making Inuits Palliative Care/psychology Time-to-Treatment Interviews as Topic 03 medical and health sciences Nursing Journal Article Humans Family Patient participation business.industry Public Health Environmental and Occupational Health Family/psychology Advanced cancer Relatives advanced cancer care Cross-Sectional Studies Patient Participation business |
| Zdroj: | Augustussen, M, Hounsgaard, L, Pedersen, M L, Sjøgren, P & Timm, H 2017, ' Relatives' level of satisfaction with advanced cancer care in Greenland : a mixed methods study ', International Journal of Circumpolar Health, vol. 76, no. 1, 1335148 . https://doi.org/10.1080/22423982.2017.1335148 International Journal of Circumpolar Health, Vol 76, Iss 1 (2017) International Journal of Circumpolar Health Augustussen, M, Hounsgaard, L, Pedersen, M L, Sjøgren, P & Timm, H 2017, ' Relatives' level of satisfaction with advanced cancer care in Greenland : a mixed methods study ', International Journal of Circumpolar Health, vol. 76, 1335148 . https://doi.org/10.1080/22423982.2017.1335148 |
| DOI: | 10.1080/22423982.2017.1335148 |
| Popis: | Palliative cancer care in Greenland is provided by health professionals at local level, the national Queen Ingrid’s Hospital and at Rigshospitalet in Denmark. To improve and develop care for relatives of patients with advanced cancer, we conducted a mixed method study examining relatives’ level of satisfaction with care and treatment and their current main concerns. The aim was to investigate relatives’ level of satisfaction with advanced cancer care and bring to light their current main concerns. The FAMCARE-20 questionnaire was translated to Greenlandic and pilot tested. The questionnaire was supplemented by open-ended questions about relative’s current main concerns and analyzed with a phenomenological hermeneutical approach. Greenlandic patients with advanced cancer who were previously participating in a prospective study were asked if their closest adult relative would participate in the study. Telephone interviews were conducted and relatives responded to the questionnaire. A total of thirty-two relatives were contacted by telephone and 30 (94%) completed the FAMCARE-20 questionnaire and answered open-ended questions. The highest rate of satisfaction was with the availability of a hospital bed (66%) and relatives were the most dissatisfied with the lack of inclusion in decision making related to treatment and care (71%) and the length of time required to diagnose cancer (70%). Responses to the open-ended questions revealed that relatives faced challenges in gaining access to information from health professionals. They experienced a lack of security, worries about the future and a lack of support at home. The study showed a substantial level of dissatisfaction among relatives of patients with advanced cancer. We strongly recommend a focus on psychosocial care, more access to information and to include relatives in decision making and in the future planning of palliative care services. An assessment of relatives’ needs is essential to develop an adequate palliative care in a range of settings. |
| Databáze: | OpenAIRE |
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