Diagnosis and treatment of Chiari malformation and syringomyelia in adults: international consensus document
| Autor: | Marcella Curone, Marilena Ferraris, Dario Cocito, Diego Garbossa, Andrea Barbanera, Andrew Brodbelt, Juan Sahuquillo, Palma Ciaramitaro, Carlo Celada, Alessandra Solari, Jorg Klekamp, Mado Gilanton, Sylvia Morar, Alessandro Bertuccio, Maria Consuelo Valentini, Paolo Perrini, Massimiliano Visocchi, Mariangela Farinotti, Giuseppe Talamonti, Paola Peretta, Luisa Chiapparini, Luca Massimi, Fulvio Massaro, Grazia Devigili, Veronica Saletti, Marika Furlanetto, George I. Jallo, Paolo A. Bolognese, Marieta Karadjova, Laura Valentini, Fabio Triulzi, Marcus A. Stoodley, Maria A. Poca, Fabrice Parker, Alessandra Erbetta |
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| Jazyk: | angličtina |
| Rok vydání: | 2022 |
| Předmět: |
Adult
medicine.medical_specialty Consensus media_common.quotation_subject Delphi method Chiari malformation Dermatology 03 medical and health sciences 0302 clinical medicine Rare Diseases Jury Surveys and Questionnaires medicine Adults Humans 030212 general & internal medicine Child media_common business.industry Consensus conference Pediatric neurologist General Medicine Classification Surgery Syringomyelia Arnold-Chiari Malformation medicine.disease Psychiatry and Mental health Family medicine Neurology (clinical) Patient representatives business 030217 neurology & neurosurgery |
| Popis: | Syringomyelia and Chiari malformation are classified as rare diseases on Orphanet, but international guidelines on diagnostic criteria and case definition are missing. Aim of the study: to reach a consensus among international experts on controversial issues in diagnosis and treatment of Chiari 1 malformation and syringomyelia in adults. A multidisciplinary panel of the Chiari and Syringomyelia Consortium (4 neurosurgeons, 2 neurologists, 1 neuroradiologist, 1 pediatric neurologist) appointed an international Jury of experts to elaborate a consensus document. After an evidence-based review and further discussions, 63 draft statements grouped in 4 domains (definition and classification/planning/surgery/isolated syringomyelia) were formulated. A Jury of 32 experts in the field of diagnosis and treatment of Chiari and syringomyelia and patient representatives were invited to take part in a three-round Delphi process. The Jury received a structured questionnaire containing the 63 statements, each to be voted on a 4-point Likert-type scale and commented. Statements with agreement |
| Databáze: | OpenAIRE |
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