A qualitative study using semi-structured interviews of palliative care patients’ views on corneal donation and the timing of its discussion
| Autor: | Hazel Gilkes, Karen Neoh, Clare Rayment, Lucy Walker |
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| Rok vydání: | 2018 |
| Předmět: |
Male
Semi-structured interview medicine.medical_specialty Time Factors Palliative care medicine.medical_treatment Decision Making Corneal Transplantation 03 medical and health sciences 0302 clinical medicine 030502 gerontology Humans Medicine 030212 general & internal medicine Organ donation Donor shortage Qualitative Research Corneal transplantation Aged business.industry Palliative Care General Medicine Middle Aged United Kingdom Anesthesiology and Pain Medicine Donation Family medicine Hospice and Palliative Care Nursing Female Patient Participation 0305 other medical science business Qualitative research |
| Zdroj: | Palliative Medicine. 32:1428-1437 |
| ISSN: | 1477-030X 0269-2163 |
| DOI: | 10.1177/0269216318784210 |
| Popis: | Background: Corneal transplantation can lead to sight restoration, but globally there is a donor shortage. Many palliative care patients can donate their corneas but think they are ineligible due to comorbidities. Healthcare professionals are reluctant to broach the topic, but studies have shown that relatives would be upset if they were not offered this chance. There is no existing research involving patients. Aim: To understand the views and feelings of patients in palliative care settings towards corneal donation and explore their opinions regarding the timing of its discussion. Design: This is an exploratory study based at one UK palliative care unit. A census sampling method was used. Nine participants took part in semi-structured interviews and thematic analysis was undertaken. Results: Themes found included altruistic motivation and the value of sight. Family views were important, but the influence on final decisions varied. The timing of discussion relative to the illness trajectory was important; patients want to be able to engage fully in conversations and had concerns about not being able to think clearly when closer to death. Participants also associated discussion of donation as an indication of a poor prognosis. Patients prefer face-to-face discussions with someone whom they had a close rapport. Many had misconceptions about eligibility. Conclusion: This is the first study to engage directly with palliative care patients and to establish their views on the timing of corneal donation discussions. Patients are willing to discuss donation, and further exploration of patient views in this area should be undertaken. |
| Databáze: | OpenAIRE |
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