Race and ancestry in biomedical research: exploring the challenges
| Autor: | Barbara A. Koenig, Sarah E. Ali-Khan, Billie Jo Hardy, Darren Shickle, Rick A. Kittles, Vardit Ravitsky, Laura Arbour, Timothy Caulfield, Jonathan Kahn, Esteban G. Burchard, Simrat Harry, Béatrice Séguin, Stephen W. Scherer, Guilherme Suarez-Kurtz, Richard S. Cooper, Stephanie M. Fullerton, Robyn Hyde-Lay, Sandra Soo-Jin Lee, Pamela Sankar, Abdallah S. Daar, Michael J. Malinowski |
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| Rok vydání: | 2009 |
| Předmět: |
medicine.medical_specialty
Clinical Sciences Population Alternative medicine Context (language use) Human genetic variation Bioinformatics and research governance Terminology 8.3 Policy Race (biology) Correspondence Genetics Medicine Genetics(clinical) education Molecular Biology Genetics (clinical) education.field_of_study business.industry Human Genome ethics Variety (cybernetics) Action (philosophy) Molecular Medicine Engineering ethics Generic health relevance business |
| Zdroj: | Genome medicine, vol 1, iss 1 Genome Medicine |
| ISSN: | 1756-994X |
| DOI: | 10.1186/gm8 |
| Popis: | The use of race in biomedical research has, for decades, been a source of social controversy. However, recent events, such as the adoption of racially targeted pharmaceuticals, have raised the profile of the race issue. In addition, we are entering an era in which genomic research is increasingly focused on the nature and extent of human genetic variation, often examined by population, which leads to heightened potential for misunderstandings or misuse of terms concerning genetic variation and race. Here, we draw together the perspectives of participants in a recent interdisciplinary workshop on ancestry and health in medicine in order to explore the use of race in research issue from the vantage point of a variety of disciplines. We review the nature of the race controversy in the context of biomedical research and highlight several challenges to policy action, including restrictions resulting from commercial or regulatory considerations, the difficulty in presenting precise terminology in the media, and drifting or ambiguous definitions of key terms. |
| Databáze: | OpenAIRE |
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