Patient-reported outcome measures in hemodialysis patients: results of the first multicenter cross-sectional ePROMs study in France

Autor: Charlotte Dumas De La Roque, Julie Haesebaert, Philippe Chauveau, Anne Kolko, Catherine Lasseur, Agnes Caillette-Beaudoin, Pablo Ureña, Mathilde Prezelin-Reydit, M. Lino-Daniel, Abdallah Guerraoui
Přispěvatelé: Hôpital Lucien Hussel Vienne [Vienne, France] (HLHV), AURAD Aquitaine, AURA [Paris], Research on Healthcare Performance (RESHAPE - Inserm U1290 - UCBL1), Université Claude Bernard Lyon 1 (UCBL), Université de Lyon-Université de Lyon-Institut National de la Santé et de la Recherche Médicale (INSERM), Malbec, Odile
Jazyk: angličtina
Rok vydání: 2021
Předmět:
Zdroj: BMC Nephrology
BMC Nephrology, BioMed Central, 2021, 22 (1), pp.357. ⟨10.1186/s12882-021-02551-3⟩
BMC Nephrology, Vol 22, Iss 1, Pp 1-8 (2021)
ISSN: 1471-2369
Popis: Background Kidney failure with replacement therapy and hemodialysis are associated with a decrease in quality of life (QOL). Self-reported QOL symptoms are not always prioritized by the medical team, potentially leading to conflicting priorities with patients. Electronic patient-reported outcome measures (ePROMs) allow physicians to better identify these symptoms. The objective was to describe the prevalence of symptoms self-reported by hemodialysis (HD) patients. Methods A multicenter cross-sectional study was conducted in three HD centers. Patients were included if they were 18 years old or over treated with HD for at least 3 months in a center. Data were collected by the patient via a self-administered ePROMs questionnaire. Data included patient characteristics, post-dialysis fatigue and intensity, recovery time after a session, perceived stress, impaired sleep the day before the dialysis session, current state of health and the change from the past year. A multivariate analysis was conducted to identify relations between symptoms. Results In total, we included 173 patients with a mean age of 66.2 years, a mean ± SD hemodialysis duration of 48.9 ± 58.02 months. The prevalence of fatigue was 72%. 66% had a high level of stress (level B or C). Recovery time was more than 6 h after a HD session for 25% of patients and 78% declared they had a better or unchanged health status than the previous year. Sleep disturbance was associated with cardiovascular comorbidities (OR 5.08 [95% CI, 1.56 to 16.59], p = 0.007). Conclusions Fatigue and stress were the main symptoms reported by HD patients. The patient’s care teams should better consider these symptoms.
Databáze: OpenAIRE
Externí odkaz: