A Novel Clinical Research Modality for Enrolling Diverse Participants Using a Diverse Team
| Autor: | Sara Muneer, Ramsha Jinnah, Tapasvini Paralkar, Jack Zeitz, Phoebe Lay, Carolyn Chen, Syed Hadi Ahmed, Alejandra Nitsch, Nicole Osier, Minha Ghani |
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| Rok vydání: | 2020 |
| Předmět: |
medicine.medical_specialty
Best practice Population Ethnic group Sample (statistics) Article lcsh:RC321-571 diversity methods 03 medical and health sciences 0302 clinical medicine children brain injuries medicine 030212 general & internal medicine education lcsh:Neurosciences. Biological psychiatry. Neuropsychiatry education.field_of_study Modality (human–computer interaction) General Neuroscience traumatic brain injury other student-led Biobank sample Health equity participant-focused recruitment Family medicine Population study Psychology 030217 neurology & neurosurgery |
| Zdroj: | Brain Sciences Volume 10 Issue 7 Brain Sciences, Vol 10, Iss 434, p 434 (2020) |
| ISSN: | 2076-3425 |
| Popis: | The advancement of the pediatric traumatic brain injury (TBI) knowledge base requires biospecimens and data from large samples. This study seeks to describe a novel clinical research modality to establish best practices for enrolling a diverse pediatric TBI population and quantifying key information on enrollment into biobanks. Screening form responses were standardized and cleaned through Google Sheets. Data were used to analyze total individuals at each enrollment stage. R was utilized for final analysis, including logistic model and proportion statistical tests, to determine further significance and relationships. Issues throughout data cleaning shed light on limitations of the consent modality. The results suggest that through a diverse research team, the recruited sample exceeds traditional measures of representation (e.g., sex, race, ethnicity). Sex demographics of the study are representative of the local population. Screening for candidates is critical to the success of the consent modality. The consent modality may be modified to increase the diversity of the study population and accept bilingual candidates. Researchers must implement best practices, including increasing inclusivity of bilingual populations, utilizing technology, and improving participant follow-up, to improve health disparities for understudied clinical populations. |
| Databáze: | OpenAIRE |
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