'When everything changes:' Parent perspectives on the challenges of accessing care for a child with a disability
| Autor: | Ashley D. Walker, Kimberly Weeks, Moya L. Alfonso, Joseph Telfair, Gavin T. Colquitt |
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| Rok vydání: | 2016 |
| Předmět: |
Adult
Male Parents Rural Population Gerontology 030506 rehabilitation Georgia Adolescent Urban Population Health Services Accessibility Young Adult 03 medical and health sciences Face-to-face 0302 clinical medicine Quality of life (healthcare) Health care medicine Humans 030212 general & internal medicine Social isolation Child business.industry Public Health Environmental and Occupational Health General Medicine Disabled Children Health equity Local community Attitude Caregivers Social Isolation Content analysis Quality of Life Female Rural area medicine.symptom 0305 other medical science business Psychology |
| Zdroj: | Disability and Health Journal. 9:157-161 |
| ISSN: | 1936-6574 |
| DOI: | 10.1016/j.dhjo.2015.06.002 |
| Popis: | Background Health disparities exist among individuals living in rural and urban contexts in terms of access to health care and overall mortality. These disparities are typically greater for youth with disabilities living in rural areas, who face additional barriers in receiving health and support services specific to their disability. Parents are typically the ones responsible for coordinating the care needed by children with a disability; however, with numerous barriers present families are not provided adequate support to care for a child with disabilities. Objective The purpose of this study was to examine barriers and facilitators to accessing health and support services among urban and rural families of children with disabilities. Methods In-depth interviews were conducted with parents who provide care for an adolescent with a disability. The sample was comprised of parents from one rural county ( N = 9) and one urban county ( N = 10) in Georgia. Parental interviews were conducted face to face by a trained researcher. Each interview was audio-recorded. The recordings were transcribed and content analysis used to create codes and identify emerging themes. Results The common themes found during the analysis include accessibility of health and support resources, transitions, and social isolation. Conclusions When comparing urban and rural areas, barriers to access do differ in terms of availability, but analysis revealed more similarities existed among parents from both contexts. Efforts must be made to increase opportunities for youth with disabilities to become connected with the local community in order to improve quality of life for families. |
| Databáze: | OpenAIRE |
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