Development of the First Patient-centred Set of Outcomes for Muscle-invasive and Metastatic Bladder Cancer: A Multicentre Initiative
| Autor: | Douwe H. Biesma, Paul B. van der Nat, Richard P. Meijer, Harm H.E. van Melick, M. Los, Simon Horenblas, Diederik M. Somford, Daan J. Reesink, Ewoudt M W van de Garde |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
medicine.medical_specialty
Urology media_common.quotation_subject Delphi method Disease lcsh:RC870-923 lcsh:RC254-282 Quality of life (healthcare) Multidisciplinary approach Muscle invasive Health care medicine Quality (business) Intensive care medicine Standard set of outcome measures media_common Bladder cancer business.industry Cancer medicine.disease lcsh:Diseases of the genitourinary system. Urology lcsh:Neoplasms. Tumors. Oncology. Including cancer and carcinogens Bladder Cancer Patient-reported outcome measures Metastatic Invasive bladder cancer business |
| Zdroj: | European Urology Open Science, Vol 26, Iss, Pp 18-26 (2021) European Urology Open Science European Urology Open Science, 26, 18. Elsevier BV |
| ISSN: | 2666-1683 2666-1691 |
| Popis: | Background To improve and compare outcomes in healthcare, it is necessary to standardise outcome measurements. There are no widely accepted standardised outcome measures reflecting quality of care for bladder cancer (BCa) patients. Objective The aim of this study was to create a standardised set of outcomes for patients with muscle-invasive or metastatic BCa, using the value-based healthcare principles. Design, setting, and participants A multidisciplinary working group of 25 healthcare professionals and patient representatives was assembled, to develop the set. Outcome measurements and statistical analysis We used an online RAND-modified Delphi process to prioritise, discuss, and reach consensus regarding the outcomes, case-mix variables, and treatment factors. Results and limitations Recognising the heterogeneity of patients with BCa, the working group defined the scope as patients with muscle-invasive and metastatic BCa. A total of 24 outcomes, including ten patient-reported outcomes, were included in the standard set of outcomes, covering survival, complication rates, recurrence of disease, readmissions after treatment, and quality of life (QoL). Fourteen case-mix variables were included. The EQ-5D and European Organisation for Research and Treatment of Cancer quality of life (EORTC-QLQ) questionnaires were recommended to measure QoL. Conclusions We developed the first standardised set of patient-centred outcomes for muscle-invasive and metastatic BCa. The sue of this set enables institutions to monitor, compare, and improve the quality of BCa care, on an international level. Patient summary Our group of healthcare professionals and patient representatives recommended a standardised set of patient-centred outcomes to be followed during the treatment of patients with muscle-invasive or metastatic bladder cancer, in order to monitor, compare, and improve the quality of care. Take Home Message We developed the first standardised set of patient-centred outcomes for muscle-invasive and metastatic bladder cancer. The use of this set enables institutions to monitor, compare, and improve the quality of bladder cancer care on an international level. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
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