Designing a web-application to support home-based care of childhood CKD stages 3-5: Qualitative study of family and professional preferences
| Autor: | Sheila Judge Santacroce, Ian Carolan, Trish Smith, Noreen Hanif, Veronica Swallow, Andrew Hall, Nicholas J. A. Webb |
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| Jazyk: | angličtina |
| Rok vydání: | 2014 |
| Předmět: |
Male
Attitude of Health Personnel MEDLINE Chronic kidney disease (CKD) Parental care-giving Long-term Nursing Software Design Schema (psychology) Humans Web application Medicine Clinical support Renal Insufficiency Chronic Child Children Consumer behaviour Self-efficacy Interactive health communication applications (IHCA) Internet business.industry Infant Newborn Infant Consumer Behavior Online parent information and support (OPIS) application Home Care Services United Kingdom Caregivers Nephrology Child Preschool Therapy Computer-Assisted Needs assessment Female The Internet business Needs Assessment Software Research Article Qualitative research |
| Zdroj: | BMC Nephrology |
| ISSN: | 1471-2369 |
| Popis: | Background: There is a lack of online, evidence-based information and resources to support home-based care of childhood CKD stages 3-5. Methods. Qualitative interviews were undertaken with parents, patients and professionals to explore their views on content of the proposed online parent information and support (OPIS) web-application. Data were analysed using Framework Analysis, guided by the concept of Self-efficacy. Results: 32 parents, 26 patients and 12 professionals were interviewed. All groups wanted an application that explains, demonstrates, and enables parental clinical care-giving, with condition-specific, continously available, reliable, accessible material and a closed communication system to enable contact between families living with CKD. Professionals advocated a regularly updated application to empower parents to make informed health-care decisions. To address these requirements, key web-application components were defined as: (i) Clinical care-giving support (information on treatment regimens, video-learning tools, condition-specific cartoons/puzzles, and a question and answer area) and (ii) Psychosocial support for care-giving (social-networking, case studies, managing stress, and enhancing families' health-care experiences). Conclusions: Developing a web-application that meets parents' information and support needs will maximise its utility, thereby augmenting parents' self-efficacy for CKD caregiving, and optimising outcomes. Self-efficacy theory provides a schema for how parents' self-efficacy beliefs about management of their child's CKD could potentially be promoted by OPIS. © 2014 Swallow et al.; licensee BioMed Central Ltd. |
| Databáze: | OpenAIRE |
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