Inter-rater reliability of care home staff’s proxy judgements with residents’ assessments of their own health-related quality of life: an analysis of the PATCH trial EQ-5D data
| Autor: | Ismail Patel, Amanda Farrin, M. Goodwin, K. Hull, Liz Graham, Anne Forster, Bonnie Cundill, Claire Hulme, Alison Ellwood, Charlotte Kelly, J. Fisher |
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| Rok vydání: | 2021 |
| Předmět: |
Gerontology
Aging Visual analogue scale Cost effectiveness Judgement care staff Proxy (climate) older people AcademicSubjects/MED00280 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) EQ-5D Surveys and Questionnaires Completion rate Humans Medicine care homes 030212 general & internal medicine cost effectiveness business.industry 030503 health policy & services Reproducibility of Results proxy measures General Medicine Proxy Nursing Homes health-related quality of life Inter-rater reliability Quality of Life Geriatrics and Gerontology 0305 other medical science business Research Paper |
| Zdroj: | Age and Ageing |
| ISSN: | 1468-2834 0002-0729 |
| DOI: | 10.1093/ageing/afab053 |
| Popis: | Objectives to compare care staff proxies with care home residents’ self-assessment of their health-related quality of life (HRQoL). Methods we assessed the degree of inter-rater reliability between residents and care staff proxies for the EQ-5D-5L index, domains and EQ Visual Analogue Scale at baseline, 3 months and 6 months, collected as part of the PATCH trial. We calculated kappa scores. Interpreted as 0.6 substantial to almost perfect agreement. Qualitative interviews with care staff and researchers explored the challenges of completing these questions. Results over 50% of the HRQoL data from residents was missing at baseline compared with a 100% completion rate by care staff proxies. A fair-to-moderate level of agreement was found for the EQ-5D-5L index. A higher level of agreement was achieved for the EQ-5D-5L domains of mobility and pain. Resident ‘non-completers’ were more likely to: be older, have stayed a longer duration in the care home, have lower Barthel Index and Physical Activity and Mobility in Residential Care (PAM-RC) scores, a greater number of co-morbidities and have joined the trial through consultee agreement. Interviews with staff and researchers indicated that it was easier to rate residents’ mobility levels than other domains, but in general it was difficult to obtain data from residents or to make an accurate proxy judgement for those with dementia. Conclusions whilst assessing HRQoL by care staff proxy completion provides a more complete dataset, uncertainty remains as to how representative these values are for different groups of residents within care homes. |
| Databáze: | OpenAIRE |
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