'Have I argued with my family this week?': What questions do those with lived experience choose to monitor their bipolar disorder?
| Autor: | Julia Savage, Katherine Gordon-Smith, Ian Jones, Nicholas John Craddock, Kate E. A. Saunders, Lisa Jones |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: |
Coping (psychology)
Bipolar Disorder BF Anxiety Bipolar disorder research 03 medical and health sciences 0302 clinical medicine Rating scale Surveys and Questionnaires medicine Humans Bipolar disorder Panic Middle Aged medicine.disease Anxiety Disorders Mental health 030227 psychiatry Affect Psychiatry and Mental health Clinical Psychology Mood medicine.symptom Psychology 030217 neurology & neurosurgery Clinical psychology |
| Zdroj: | Online: 0165-0327 |
| DOI: | 10.1016/j.jad.2020.11.034 |
| Popis: | Background: Electronic self-report mood monitoring tools for individuals with bipolar disorder (BD) are rapidly emerging and predominately employ predefined symptom-based questions. Allowing individuals to additionally choose what they monitor in relation to their BD offers the unique opportunity to capture and gain a deeper insight into patient priorities in this context. Methods: In addition to monitoring mood symptoms with two standardised self-rated questionnaires, 308 individuals with BD participating in the Bipolar Disorder Research Network True Colours electronic mood-monitoring tool for research chose to create and complete additional personalised questions. A content analysis approach was used to analyse the content of these questions. Results: 35 categories were created based on the personalised questions with the most common being physical activity and exercise, anxiety and panic, sleep and coping/stress levels. The categories were grouped into six overarching themes 1) mental health; 2) behaviour and level of functioning; 3) physical wellbeing; 4) health behaviours; 5) active self-management; and, 6) interpersonal. Limitations: The average age of the sample was around 50 years meaning our findings may not be generalisable to younger individuals with BD. Conclusions: Aspects of BD important to patients in relation to longitudinal monitoring extend well beyond mood symptoms, highlighting the limitations of solely relying on standardised questions/mood rating scales based on symptoms primarily used for diagnosis. Additional symptoms and aspects of life not necessarily useful diagnostically for BD may be more important for individuals themselves to monitor and have more meaning in capturing their own experience of changes in BD severity. |
| Databáze: | OpenAIRE |
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