Reproductive Health Choices for Young Adults With Sickle Cell Disease or Trait
| Autor: | Rigo Angulo, Robert E. Molokie, Zhongsheng Zhao, Veronica Angulo, Stephanie A. Pelligra, Yingwei Yao, Patricia E. Hershberger, Jesus Carrasco, Marie L. Suarez, Alexis A. Thompson, Bonnye Johnson, Diana J. Wilkie, Dennie T. Rogers, Edward Wang, David Shuey, Robert J. Labotka, Christine Stahl, Agatha M. Gallo |
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| Rok vydání: | 2013 |
| Předmět: |
Adult
Male Gerontology Health Knowledge Attitudes Practice Adolescent Anemia Sickle Cell Intention Disease Article law.invention Patient Education as Topic Randomized controlled trial law hemic and lymphatic diseases Intervention (counseling) medicine Humans Young adult General Nursing Reproductive health Internet Sickle cell trait business.industry Theory of planned behavior Problem-Based Learning medicine.disease United States Black or African American Reproductive Health Multimedia Family Planning Services Trait Female business |
| Zdroj: | Nursing Research. 62:352-361 |
| ISSN: | 0029-6562 |
| DOI: | 10.1097/nnr.0b013e3182a0316b |
| Popis: | BACKGROUND People with sickle cell disease (SCD) or sickle cell trait (SCT) may not have information about genetic inheritance needed for making informed reproductive health decisions. CHOICES is a Web-based, multimedia educational intervention that provides information about reproductive options and consequences to help those with SCD or SCT identify and implement an informed parenting plan. Efficacy of CHOICES compared with usual care must be evaluated. OBJECTIVE The purpose was to compare immediate posttest effects of CHOICES versus an attention-control usual care intervention (e-Book) on SCD-/SCT-related reproductive health knowledge, intention, and behavior. METHODS In a randomized controlled study, we recruited subjects with SCD/SCT from clinics, community settings, and online networks with data collected at sites convenient to the 234 subjects with SCD (n = 136) or SCT (n = 98). Their ages ranged from 18 to 35 years; 65% were women, and 94% were African American. Subjects completed a measure of sickle cell reproductive knowledge, intention, and behavior before and immediately after the intervention. RESULTS Compared with the e-Book group, the CHOICES group had significantly higher average knowledge scores and probability of reporting a parenting plan to avoid SCD or SCD and SCT when pretest scores were controlled. Effects on intention and planned behavior were not significant. The CHOICES group showed significant change in their intention and planned behavior, whereas the e-Book group did not show significant change in their intention, but their planned behavior differed significantly. DISCUSSION Initial efficacy findings are encouraging but warrant planned booster sessions and outcome follow-ups to determine sustained intervention efficacy on reproductive health knowledge, intention, and actual behavior of persons with SCD/SCT. |
| Databáze: | OpenAIRE |
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