A longitudinal qualitative study to explore and optimize self-management in mild to end stage chronic kidney disease patients with limited health literacy: Perspectives of patients and health care professionals
| Autor: | Andrea F. de Winter, Sijmen A. Reijneveld, Ralf Westerhuis, Marco D. Boonstra, Gerjan Navis, Janne M. Tullius, Johanna P.M. Vervoort |
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| Přispěvatelé: | Public Health Research (PHR), Value, Affordability and Sustainability (VALUE), Groningen Kidney Center (GKC) |
| Rok vydání: | 2020 |
| Předmět: |
health promotion
Health Personnel education longitudinal research Psychological intervention Health literacy patient education 03 medical and health sciences 0302 clinical medicine Nursing Health care Medicine Humans 030212 general & internal medicine Renal Insufficiency Chronic Qualitative Research Self-management business.industry 030503 health policy & services Communication Self-Management patient-centered General Medicine Focus group Health Literacy Health promotion 0305 other medical science business Qualitative research Patient education |
| Zdroj: | Patient Education and Counseling, 105(1), 88-104. ELSEVIER IRELAND LTD |
| ISSN: | 1873-5134 0738-3991 |
| Popis: | ObjectivesLimited Health literacy (LHL) is associated with faster kidney deterioration. Health care professionals (HCPs) promote self-management to maintain kidney function, which is difficult for patients with LHL. Evidence lacks on perceived barriers and best strategies to optimize their self-management. Our study aims to explore experiences with and barriers for self-management from the perspectives of LHL patients and HCPs to identify strategies to optimize self-management.MethodsWe performed a longitudinal qualitative study with semi-structured in-depth interviews and focus group discussions among CKD patients and LHL (n=24) and HCPs (n=37) from general practices and hospitals.ResultsFour themes arose among patients: 1) CKD elusiveness, 2) suboptimal intake of knowledge 3) not taking a front-seat role, and 4) maintaining change. Among HCPs, three themes emerged: 1) not recognizing HL problems, 2) lacking effective strategies, and 3) health care barriers.ConclusionWe suggest three routes to optimize self-management: providing earlier information, applying person-centred strategies to maintain changes, and improving competencies of HCPs.Practice implicationsHCPs need to explain CKD self-management better to prevent kidney deterioration. New interventions, based on behavioural approaches, are needed to optimize self-management. HCPs need training to improve recognition and support of LHL patients. |
| Databáze: | OpenAIRE |
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